Nursing

Article Public, Environmental & Occupational Health

Foreign movement in one's own body: Patients' experiences of being awake while treated with catheter ablation-a phenomenological study

Ann-Katrin Nordblom, Anna Kjellsdotter, Gabriella Norberg Boysen, Mia Berglund

Summary: The aim of this study was to describe the experiences of patients undergoing catheter ablation while awake. Interviews were conducted with twelve patients who had undergone the procedure three to twelve months prior. The results revealed that patients relied on the expertise of others, experienced a foreign object moving in their body, and used mental focus strategies to endure the procedure.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study

Alexandra Beyermann, Margareta Asp, Tove Godskesen, Mirkka Soderman

Summary: This study aimed to explore registered nurses’ experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC). The results showed that RNs played an important role in facilitating the everyday life of ALS patients' families and offering emotional support when needed, based on the needs of both patients and their families. This was achieved through establishing a trusting relationship, balancing between the needs of patients and their families, and sharing knowledge about dying with the families.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Areas of work-life that contribute to burnout among higher education health science faculty and perception of institutional support

Megan Koster, Kristen McHenry

Summary: This investigation aimed to identify the challenges perceived by health science faculty in their role during the COVID-19 pandemic and provide opportunities for increased support. The results showed that work-life imbalance, stress and unwellness, and unmet support needs were the major issues, while workload management, administrative support, and wellness opportunities were strategies for enhanced well-being.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Review Public, Environmental & Occupational Health

Perceptions of learning and teaching human movement in physiotherapy: A systematic review and metasynthesis of qualitative studies

Sirpa Ahola, Arja Piirainen, Pirjo Vuoskoski

Summary: This article aims to summarize and synthesize the perspectives of students, therapists, and instructors on learning and teaching human movement in physiotherapy. The findings indicate that the significance of contextual factors, movement quality, and transfer should be considered in all learning and teaching of movement in physiotherapy.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

The transition of care from farm-based daycare for people with dementia: The perspective of next of kin

Liv Bjerknes Taranrod, Oyvind Kirkevold, Ingeborg Pedersen, Siren Eriksen

Summary: This study aimed to explore the experiences of next of kin during the transition of people with dementia from a farm-based daycare to another service. The study used a qualitative, descriptive design and conducted eight semi-structured interviews. The results showed that the transition period was highly stressful for next of kin due to the worsening of dementia symptoms. Next of kin focused on optimizing the everyday lives of their relatives with dementia, even at the expense of their own well-being. Most participants received support from the farm-based daycare, healthcare services, and their informal network. The study provides important insights for the development of quality services and reducing the negative effects of care on next of kin.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Development of a health promotion action with mothers aiming to support a healthy start in life for children using Participatory Action Research

Guelcan Bektas, Femke Boelsma, Jacob C. Seidell, S. Coosje Dijkstra

Summary: Health inequalities begin in the first thousand days of a child's life. Participatory action research (PAR) is a promising approach to addressing adverse contexts that contribute to these health inequalities. This article explores the experiences of mothers involved in a PAR process to develop a health promotion action supporting children and mothers. The PAR process led to the creation of Mama's World Exercise Club, a successful initiative implemented and valued by mothers in the community.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Living with invisible medical disabilities: experiences and challenges of Chilean university students disclosed in medical consultations

Agnieszka Sowinska, Rosa Pezoa Tudela

Summary: The purpose of this qualitative study is to explore the experiences and challenges faced by university students living with invisible disabilities. Through the analysis of videotaped medical consultations, three major themes were identified: experiencing overpowering symptoms, facing barriers in medical, social, and academic contexts, and engaging in self-management behaviors. The study concludes that the healthcare system fails to effectively diagnose and support students with invisible disabilities, highlighting the need for stronger links between health providers and universities to promote early disability detection and awareness-raising programs within educational institutions. Further research should focus on strategies promoting effective support mechanisms to decrease barriers and increase inclusion.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Challenges in using patient involvement principles in substance use treatment

Njal Herman Eikeng Sterri, Jan. H. Rosenvinge, Gunn Pettersen

Summary: This study explores challenges with patient involvement (PI) in the treatment of substance use disorder (SUD). The results indicate that PI in SUD is challenging due to conceptual unclarities and treatment dilemmas that may question the universality and unity of PI in substance use treatment. Therefore, there is a need to critically examine the PI concept and adapt PI principles to good clinical practice in a flexible manner.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Barriers to community healthcare delivery in urban China: a nurse perspective

Bo Li, Juan Chen

Summary: This study examines barriers to healthcare delivery from a nurse perspective in the context of Shenzhen, and provides an initial evidence framework to improve community nursing practice at organizational and policy levels.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome

Anne Karen Bakken, Anne Marit Mengshoel, Oddgeir Synnes, Elin Bolle Strand

Summary: This study explores the experiences of suffering and recovery from CFS/ME, and highlights the profound narrative shift and change in mindset that former patients go through. By actively pursuing their own healing, they develop a new sense of self-agency and a more complex understanding of the illness.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Dilemmas in rehabilitation and patient strategies in an intensive home intervention: a follow-up study

Lena-Karin Gustafsson, Anna Bondesson, Tina Pettersson, Mirkka Soderman

Summary: This study investigates the dilemmas older persons face in the reablement process, revealing disease-related issues, fatigue, and pain that hinder prescribed exercises, the emergence of new diseases and medication side effects, as well as a lack of self-motivation and mistrust towards the staff.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

What makes Chinese adolescents trapped in severe mental illness? An interactionist perspective on self and identity

Yihan Wu, Marcus Yu Lung Chiu, Weiyun Wu, Sijia Han, Jing Wang

Summary: This study aimed to explore the perspectives of self and identity among Chinese adolescents with severe mental illness, focusing on their illness experience and subjective meaning of diagnosis. Thirty-one Chinese adolescents were interviewed and the data were analyzed according to constructivist grounded theory principles. The results showed that identity formation is a fluctuating and non-linear process for these adolescents, with a tendency towards negative self-perception. The study also highlighted the positive aspects of identity formation that can arise from the experience of illness, such as enhanced realistic perception and increased empathy.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

How people diagnosed with borderline personality disorder experience relationships to oneself and to others. A qualitative in-depth study

Christian Moltu, Britt Kverme, Marius Veseth, Eli Natvik

Summary: This study aimed to explore the experiences of individuals recently diagnosed with BPD in their relationships with themselves and others. The results revealed feelings of insecurity, unsafety, and fear in these relationships. Participants employed various coping strategies and sought feelings of safety. A limitation of the study was the recruitment of female participants only.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Psychosocial work environment and mental wellbeing of food delivery platform workers in Helsinki, Finland: A qualitative study

Benta Mbare

Summary: This study aimed to explore and understand the psychosocial work environment of food delivery platforms in the Helsinki region, and how it affects the mental wellbeing of couriers. Findings from 20 in-depth interviews revealed that while food delivery platform work provided income and job opportunities, its work environment was psychologically burdensome, negatively impacting the mental health of couriers. The study recommends future longitudinal research to further examine the relationship between food delivery platform work and courier mental health, and the implementation of interventions and policies to improve the psychosocial work environment for better mental health and wellbeing of couriers.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Moms on the move: A qualitative exploration of a postpartum group exercise program on physical activity behaviour at three distinct time points

Iris A. Lesser, Carl P. Nienhuis, Gillian L. Hatfield

Summary: This study aimed to explore new mothers' experiences before and after participating in a group-based physical activity program. The findings showed that participating in the program had positive benefits for the mental and physical health of postpartum women and led to changes in their physical activity behavior.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Looking through the lens: a photovoice study examining access to services for newcomer children

Nahal Fakhari, Jessie-Lee D. Mcisaac, Rebecca Feicht, Sarah Reddington, Susan Brigham, April Mandrona, Christine Mclean, Mary Jane Harkins, Emma Stirling Cameron

Summary: The purpose of this study is to examine how newcomer families find and utilize early childhood programs and services, as perceived by both families and early childhood educators within a settlement organization. The research highlights the systemic barriers that impede access to services for newcomer children, such as financial challenges, language barriers, and cultural differences. Despite these obstacles, culturally responsive programs were found to enhance the connection between families and services.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Multiple psychological senses of community and community influences on personal recovery processes from substance use problems in later life: a collaborative and deductive reflexive thematic analysis

Nina Kavita Heggen Bahl, Emil Oversveen, Morten Brodahl, Hilde Eileen Nafstad, Rolv Mikkel Blakar, Anne Signe Landheim, Kristin Tommervik

Summary: This study aims to investigate the influence of psychological sense of community (PSOC) and communities on later life recovery processes. The findings suggest that later life recovery involves multiple communities and affective states. Importantly, the new findings extend current understandings of later life recovery.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

The relationship between subjective well-being and food: a qualitative study based on children's perspectives

Cristina Vaque-Crusellas, Monica Gonzalez-Carrasco, Ferran Casas

Summary: Despite the lack of consensus on the domains of children's subjective well-being (SWB), this study focuses on the role of food in children's SWB, revealing new insights from children's perspectives. The findings suggest that promoting healthy eating programs for children should take into account their SWB. Additionally, group discussions are a valuable tool for exploring subjective topics among children.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Perfection is a sad and lonely place: A study of existential vulnerability in the life stories of persons struggling with perfectionism

Per-Einar Binder, Vivian Irena Woodfin, Aslak Hjeltnes

Summary: This paper investigates the reasons why individuals turn to perfectionistic striving and ideals as a solution, and examines the impact of these on their personal identity and values. The study suggests that perfectionism can be seen as a way of handling existential vulnerability when relational resources are lacking. The findings reveal the influence of perfectionistic themes on narrative constructions, values, belongingness, and embodiment.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)

Article Public, Environmental & Occupational Health

Parents' lived experience of living with and caring for their burn-injured child in a home setting

Lina Sophie Toft Lernevall, Asgjerd Litlere Moi, Eva Gjengedal, Pia Dreyer

Summary: This study aimed to explore the experiences of parents caring for a burn-injured child at home after discharge. The findings revealed that parents often lacked necessary skills, they felt grief over the loss of the past and fear for the unknown future, and they longed for support and contact from healthcare professionals.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2023)