相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。The beliefs, motivations, and expectations of parents who have enrolled the children in a genetic biorepository
Erin D. Harris et al.
GENETICS IN MEDICINE (2012)
Incidental findings of therapeutic misconception in biobank-based research
Colin M. E. Halverson et al.
GENETICS IN MEDICINE (2012)
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
Susan M. Wolf et al.
GENETICS IN MEDICINE (2012)
Biobanking for epidemiology
G. A. Zielhuis
PUBLIC HEALTH (2012)
How do women feel about their cervical cytology samples being used for research?
Caroline Coope et al.
JOURNAL OF FAMILY PLANNING AND REPRODUCTIVE HEALTH CARE (2012)
RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH
Judy Allen et al.
BIOETHICS (2011)
The Ethics of Research Biobanking: A Critical Review of the Literature
Klaus Hoeyer
Biotechnology & Genetic Engineering Reviews (2011)
A systematic review of the effect of retention methods in population-based cohort studies
Cara L. Booker et al.
BMC PUBLIC HEALTH (2011)
IF I COULD IN A SMALL WAY HELP: MOTIVATIONS FOR AND BELIEFS ABOUT SAMPLE DONATION FOR GENETIC RESEARCH
Marsha Michie et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)
THE MEANING OF GENETIC RESEARCH RESULTS: REFLECTIONS FROM INDIVIDUALS WITH AND WITHOUT A KNOWN GENETIC DISORDER
R. Jean Cadigan et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)
PARENT PERSPECTIVES ON PEDIATRIC GENETIC RESEARCH AND IMPLICATIONS FOR GENOTYPE-DRIVEN RESEARCH RECRUITMENT
Holly K. Tabor et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)
A European Survey on Biobanks: Trends and Issues
E. Zika et al.
PUBLIC HEALTH GENOMICS (2011)
Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study
Samantha A. Streicher et al.
JOURNAL OF COMMUNITY GENETICS (2011)
Communication of Biobanks' Research Results: What Do (Potential) Participants Want?
Tineke M. Meulenkamp et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2010)
Hypothetical and factual willingness to participate in biobank research
Linus Johnsson et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2010)
Genomic research and wide data sharing: Views of prospective participants
Susan Brown Trinidad et al.
GENETICS IN MEDICINE (2010)
An investigation of patients' motivations for their participation in genetics-related research
N. Hallowell et al.
JOURNAL OF MEDICAL ETHICS (2010)
Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study
Philippe A. Melas et al.
JOURNAL OF MEDICAL ETHICS (2010)
Assessing the Understanding of Biobank Participants
K. E. Ormond et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2009)
Healthy Women's Motivators and Barriers to Participation in a Breast Cancer Cohort Study: A Qualitative Study
Pamela S. Sinicrope et al.
ANNALS OF EPIDEMIOLOGY (2009)
Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study
Virgilia Toccaceli et al.
BMC MEDICAL ETHICS (2009)
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
David Moher et al.
JOURNAL OF CLINICAL EPIDEMIOLOGY (2009)
Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial
Gert Helgesson et al.
PEDIATRIC DIABETES (2009)
We only did it because he asked us: Gendered accounts of participation in a population genetic data collection
Gillian Haddow
SOCIAL SCIENCE & MEDICINE (2009)
THE ETHICS OF ALTRUISM IN CLINICAL RESEARCH
Lynn A. Jansen
HASTINGS CENTER REPORT (2009)
Exploring the Acceptability and Feasibility of Conducting a Large Longitudinal Population-Based Study in Canada
Susan A. Kirkland et al.
CANADIAN JOURNAL ON AGING-REVUE CANADIENNE DU VIEILLISSEMENT (2009)
Research Participation and Internal Normativity: Understanding Why People Participate
Craig L. Fry
AMERICAN JOURNAL OF BIOETHICS (2008)
A Closer Look: Are We Subjects or Are We Donors?
Rebecca Fisher
AMERICAN JOURNAL OF BIOETHICS (2008)
Public Expectations for Return of Results from Large-Cohort Genetic Research
Juli Murphy et al.
AMERICAN JOURNAL OF BIOETHICS (2008)
Community Consultation and Communication for a Population-Based DNA Biobank: The Marshfield Clinic Personalized Medicine Research Project
Catherine A. McCarty et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2008)
Great expectations: views of genetic research participants regarding current and future genetic studies
Gail Henderson et al.
GENETICS IN MEDICINE (2008)
Subjects matter: a survey of public opinions about a large genetic cohort study
David Kaufman et al.
GENETICS IN MEDICINE (2008)
The future of incidental findings: Should they be viewed as benefits?
Lisa S. Parker
JOURNAL OF LAW MEDICINE & ETHICS (2008)
Managing incidental findings in human subjects research: Analysis and recommendations
Susan M. Wolf et al.
JOURNAL OF LAW MEDICINE & ETHICS (2008)
Beyond informed consent:: the therapeutic misconception and trust
I. de Melo-Martin et al.
JOURNAL OF MEDICAL ETHICS (2008)
Duty to disclose what? Querying the putative obligation to return research results to participants
F. A. Miller et al.
JOURNAL OF MEDICAL ETHICS (2008)
Why Might People Donate Tissue for Cancer Research? Insights from Organ/Tissue/Blood Donation and Clinical Research
Renata E. Axler et al.
PATHOBIOLOGY (2008)
A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes
Corinna Porteri et al.
PATIENT EDUCATION AND COUNSELING (2008)
Beyond misunderstanding: Written information and decisions about taking part in a genetic epidemiology study
Mary Dixon-Woods et al.
SOCIAL SCIENCE & MEDICINE (2007)
Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis
Susan A. Treloar et al.
COMMUNITY GENETICS (2007)
Informed consent and subject motivation to participate in a large, population-based genomics study: The Marshfield Clinic Personalized Medicine Research Project
Catherine A. McCarty et al.
COMMUNITY GENETICS (2007)
Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project
Beatrice Godard et al.
COMMUNITY GENETICS (2007)
Disclosing individual genetic results to research participants
Vardit Ravitsky et al.
AMERICAN JOURNAL OF BIOETHICS (2006)
Attitudes toward participation in a pregnancy and child cohort study
JL Daniels et al.
PAEDIATRIC AND PERINATAL EPIDEMIOLOGY (2006)
Should donors be allowed to give broad consent to future biobank research?
MG Hansson et al.
LANCET ONCOLOGY (2006)
Science and society - The social and ethical issues of post-genomic human biobanks
A Cambon-Thomsen
NATURE REVIEWS GENETICS (2004)
'Science is really needed - that's all I know': informed consent and the non-verbal practices of collecting blood for genetic research in northern Sweden
K Hoeyer
NEW GENETICS AND SOCIETY (2003)
Issues of consent and feedback in a genetic epidemiological study of women with breast cancer
MPM Richards et al.
JOURNAL OF MEDICAL ETHICS (2003)