4.5 Review

Why do participants enroll in population biobank studies? A systematic literature review

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Article Genetics & Heredity

Incidental findings of therapeutic misconception in biobank-based research

Colin M. E. Halverson et al.

GENETICS IN MEDICINE (2012)

Article Public, Environmental & Occupational Health

Biobanking for epidemiology

G. A. Zielhuis

PUBLIC HEALTH (2012)

Article Family Studies

How do women feel about their cervical cytology samples being used for research?

Caroline Coope et al.

JOURNAL OF FAMILY PLANNING AND REPRODUCTIVE HEALTH CARE (2012)

Article Ethics

RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH

Judy Allen et al.

BIOETHICS (2011)

Article Biotechnology & Applied Microbiology

The Ethics of Research Biobanking: A Critical Review of the Literature

Klaus Hoeyer

Biotechnology & Genetic Engineering Reviews (2011)

Review Public, Environmental & Occupational Health

A systematic review of the effect of retention methods in population-based cohort studies

Cara L. Booker et al.

BMC PUBLIC HEALTH (2011)

Article Ethics

IF I COULD IN A SMALL WAY HELP: MOTIVATIONS FOR AND BELIEFS ABOUT SAMPLE DONATION FOR GENETIC RESEARCH

Marsha Michie et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Ethics

THE MEANING OF GENETIC RESEARCH RESULTS: REFLECTIONS FROM INDIVIDUALS WITH AND WITHOUT A KNOWN GENETIC DISORDER

R. Jean Cadigan et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Ethics

PARENT PERSPECTIVES ON PEDIATRIC GENETIC RESEARCH AND IMPLICATIONS FOR GENOTYPE-DRIVEN RESEARCH RECRUITMENT

Holly K. Tabor et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Genetics & Heredity

A European Survey on Biobanks: Trends and Issues

E. Zika et al.

PUBLIC HEALTH GENOMICS (2011)

Article Genetics & Heredity

Communication of Biobanks' Research Results: What Do (Potential) Participants Want?

Tineke M. Meulenkamp et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2010)

Article Biochemistry & Molecular Biology

Hypothetical and factual willingness to participate in biobank research

Linus Johnsson et al.

EUROPEAN JOURNAL OF HUMAN GENETICS (2010)

Article Genetics & Heredity

Genomic research and wide data sharing: Views of prospective participants

Susan Brown Trinidad et al.

GENETICS IN MEDICINE (2010)

Article Genetics & Heredity

Assessing the Understanding of Biobank Participants

K. E. Ormond et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2009)

Article Public, Environmental & Occupational Health

Healthy Women's Motivators and Barriers to Participation in a Breast Cancer Cohort Study: A Qualitative Study

Pamela S. Sinicrope et al.

ANNALS OF EPIDEMIOLOGY (2009)

Review Health Care Sciences & Services

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

David Moher et al.

JOURNAL OF CLINICAL EPIDEMIOLOGY (2009)

Article Endocrinology & Metabolism

Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial

Gert Helgesson et al.

PEDIATRIC DIABETES (2009)

Article Public, Environmental & Occupational Health

We only did it because he asked us: Gendered accounts of participation in a population genetic data collection

Gillian Haddow

SOCIAL SCIENCE & MEDICINE (2009)

Article Ethics

THE ETHICS OF ALTRUISM IN CLINICAL RESEARCH

Lynn A. Jansen

HASTINGS CENTER REPORT (2009)

Article Gerontology

Exploring the Acceptability and Feasibility of Conducting a Large Longitudinal Population-Based Study in Canada

Susan A. Kirkland et al.

CANADIAN JOURNAL ON AGING-REVUE CANADIENNE DU VIEILLISSEMENT (2009)

Editorial Material Ethics

Research Participation and Internal Normativity: Understanding Why People Participate

Craig L. Fry

AMERICAN JOURNAL OF BIOETHICS (2008)

Editorial Material Ethics

A Closer Look: Are We Subjects or Are We Donors?

Rebecca Fisher

AMERICAN JOURNAL OF BIOETHICS (2008)

Article Ethics

Public Expectations for Return of Results from Large-Cohort Genetic Research

Juli Murphy et al.

AMERICAN JOURNAL OF BIOETHICS (2008)

Article Genetics & Heredity

Community Consultation and Communication for a Population-Based DNA Biobank: The Marshfield Clinic Personalized Medicine Research Project

Catherine A. McCarty et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2008)

Article Genetics & Heredity

Subjects matter: a survey of public opinions about a large genetic cohort study

David Kaufman et al.

GENETICS IN MEDICINE (2008)

Article Ethics

The future of incidental findings: Should they be viewed as benefits?

Lisa S. Parker

JOURNAL OF LAW MEDICINE & ETHICS (2008)

Article Ethics

Managing incidental findings in human subjects research: Analysis and recommendations

Susan M. Wolf et al.

JOURNAL OF LAW MEDICINE & ETHICS (2008)

Article Ethics

Beyond informed consent:: the therapeutic misconception and trust

I. de Melo-Martin et al.

JOURNAL OF MEDICAL ETHICS (2008)

Article Public, Environmental & Occupational Health

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes

Corinna Porteri et al.

PATIENT EDUCATION AND COUNSELING (2008)

Article Public, Environmental & Occupational Health

Beyond misunderstanding: Written information and decisions about taking part in a genetic epidemiology study

Mary Dixon-Woods et al.

SOCIAL SCIENCE & MEDICINE (2007)

Article Ethics

Disclosing individual genetic results to research participants

Vardit Ravitsky et al.

AMERICAN JOURNAL OF BIOETHICS (2006)

Article Public, Environmental & Occupational Health

Attitudes toward participation in a pregnancy and child cohort study

JL Daniels et al.

PAEDIATRIC AND PERINATAL EPIDEMIOLOGY (2006)

Review Genetics & Heredity

Science and society - The social and ethical issues of post-genomic human biobanks

A Cambon-Thomsen

NATURE REVIEWS GENETICS (2004)