期刊
EUROPEAN JOURNAL OF HUMAN GENETICS
卷 21, 期 1, 页码 14-20出版社
SPRINGERNATURE
DOI: 10.1038/ejhg.2012.104
关键词
biobanks; public opinion; public attitudes
资金
- Science in Society Programme of the European Commission's FP7
- Austrian Genome Project (GEN-AU)
- PrivatGen
- EC Programme for Research and Development FP7
- National Research Foundation of Korea Grant [NRF-2010-330-B00169]
This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people's engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level. European Journal of Human Genetics (2013) 21, 14-20; doi: 10.1038/ejhg.2012.104; published online 6 June 2012
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