相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。A survey of the outcome of prophylaxis, on-demand treatment or combined treatment in 18-35-year old men with severe haemophilia in six countries
D. Noone et al.
HAEMOPHILIA (2013)
Consequences of switching from prophylactic treatment to on-demand treatment in late teens and early adults with severe haemophilia A: the TEEN/TWEN study
M. J. Manco-Johnson et al.
HAEMOPHILIA (2013)
Psychosocial aspects of haemophilia: a systematic review of methodologies and findings
F. R. M. Y. Cassis et al.
HAEMOPHILIA (2012)
Recommendations for assessment, monitoring and follow-up of patients with haemophilia
P. De Moerloose et al.
HAEMOPHILIA (2012)
Quality of life in adult patients with haemophilia - a single centre experience from Sweden
K. Lindvall et al.
HAEMOPHILIA (2012)
Why should we care about quality of life in persons with haemophilia?
L. Aledort et al.
HAEMOPHILIA (2012)
Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States
N. Duncan et al.
HAEMOPHILIA (2012)
Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va)
J. -L. Poon et al.
HAEMOPHILIA (2012)
Effect of Acute Bleeding on Daily Quality of Life Assessments in Patients with Congenital Hemophilia with Inhibitors and Their Families: Observations from the Dosing Observational Study in Hemophilia
Ellis J. Neufeld et al.
VALUE IN HEALTH (2012)
Measuring patient-reported outcomes in haemophilia clinical research
D. Globe et al.
HAEMOPHILIA (2009)
Challenges of Patient-Reported Outcome Assessment in Hemophilia Care-a State of the Art Review
Monika Bullinger et al.
VALUE IN HEALTH (2009)
Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia
A. Rentz et al.
HAEMOPHILIA (2008)
The impact of severe haemophilia on the social status and quality of life among Austrian haemophiliacs
H. K. Hartl et al.
HAEMOPHILIA (2008)
Psycho-social determinants of quality of life in children and adolescents with haemophilia - A cross-cultural approach
Monika Bullinger et al.
CLINICAL PSYCHOLOGY & PSYCHOTHERAPY (2008)
Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data
M. Richards et al.
HAEMOPHILIA (2007)
Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL
C. S. Bradley et al.
HAEMOPHILIA (2006)
An exploration of health-related quality of life in adults with haemophilia - a qualitative perspective
K Beeton et al.
HAEMOPHILIA (2005)
Measuring health state preferences for hemophilia: development of a disease-specific utility instrument
J Wasserman et al.
HAEMOPHILIA (2005)
Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT)
NL Young et al.
HAEMOPHILIA (2004)
Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)
S von Mackensen et al.
HAEMOPHILIA (2004)
Health status and health-related quality of life of children with haemophilia from six West European countries
A Gringeri et al.
HAEMOPHILIA (2004)
Assessing quality of life in individuals with hereditary blood coagulation disorders
S Solovieva et al.
QUALITY OF LIFE RESEARCH (2004)
Disease-specific quality-of-life measurement tools for haemophilia patients
E Remor et al.
HAEMOPHILIA (2004)
Quality of life in children and families with bleeding disorders
M Bullinger et al.
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY (2003)
Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group
A Gringeri et al.
BLOOD (2003)
Health-related quality of life assessment in adult haemophilia patients: a systematic review and evaluation of instruments
A Szende et al.
HAEMOPHILIA (2003)
Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries
M Bullinger et al.
HAEMOPHILIA (2002)