期刊
EUROPEAN JOURNAL OF GASTROENTEROLOGY & HEPATOLOGY
卷 22, 期 6, 页码 695-704出版社
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1097/MEG.0b013e32832e0a18
关键词
5-aminosalicylic acid; compliance; education; self-management; ulcerative colitis; Web-based treatment
资金
- Bayer Health Care
- Danish Colitis Crohn Patients Organization (CCF)
- Vibeke Binder and Povl Riis Foundation
- Augustinus Foundation
- Moran Foundation
- Munkholm Foundation
- Tillotts Funding
- Scientific Council at Herlev Hospital
- Professor Fagerhol Research Foundation
- Aase and Einar Danielsen Foundation
- Ole Trock-Jansen and Hustrus Foundation
- ECCO
Background Ulcerative colitis (UC) is a lifelong disease with increasing incidence. UC requires frequent outpatient clinic visits and continuous medical treatment. Web-based self-management in other chronic diseases influences disease course, and increases self-adherence, compliance and quality of life (QoL). Lack of easy access to inflammatory bowel disease clinics and patient education, their understanding of the importance of early treatment at relapse, poor compliance and self-adherence can be partly solved by a newly developed Web-based concept. Aims To describe the development and validation of the Web-based 'Constant-Care' concept. Methods A Web-based treatment program (www.constant-care.dk) and a Patient Educational Centre for UC patients were developed. The feasibility and acceptance of the concept was validated before (group A) and 6 months after (group B) the start of a randomized controlled trial. Patients' level of disease-specific knowledge, QoL, anxiety and depression were evaluated. Results Ten (group A) and 11 (group B) patients fulfilling the diagnostic criteria of mild-to-moderate UC participated in the study. All patients reported an ability to initiate self-treatment after the educational training (ET). A significant increase in knowledge from 36 to 69% (group A) and 28 to 75% (group B) was obtained. A majority of the patients were satisfied with the ET. Patients' QoL, anxiety, depression and general well-being showed no difference after the ET. Conclusion Patient education and training through a Web-based program (www.constant-care.dk) seems to be a feasible concept for increasing patients' ability to self-initiate treatment and increase the level of disease-specific knowledge. Relevant adjustment of the concept was implemented. The final outcome of the 'Constant-Care' concept is pending. Eur J Gastroenterol Hepatol 22:695-704 (C) 2010 Wolters Kluwer Health vertical bar Lippincott Williams & Wilkins.
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