期刊
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING
卷 7, 期 4, 页码 259-263出版社
OXFORD UNIV PRESS
DOI: 10.1016/j.ejcnurse.2008.10.001
关键词
Lost to follow-up; Lapse of care; Congenital heart disease; Transfer; Transition; Advanced practice nursing
Congenital heart disease is the most frequently occurring birth defect. To date, more than 90% of the children born with a heart defect reach adulthood. Since many patients are prone to residua and sequelae, lifelong specialized care is required. However, studies indicate that about one-half to three-quarters of the patients are lost to follow-up when they have grown up. This has resulted in a virtual lost generation. Lapse of care is associated with significant morbidity. Therefore, implementation of strategies to prevent patients from failing to continue regular follow-up is critical. It is argued that transition programs that inform patients about the rationale for ongoing follow-up and that teach them how to navigate the medical system can avoid another lost generation. (C) 2008 Published by European Society of Cardiology. All rights reserved.
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