Common Symptoms and Stressors Among Individuals With Inflammatory Bowel Diseases

BACKGROUND & AIMS: We evaluated symptoms and stressful life events over a 1-year period in a population-based sample of persons with inflammatory bowel disease (IBD). METHODS: Participants from the University of Manitoba IBD Research Registry (n = 704) completed 5 surveys, given every 3 months for 1 year (552 completed all the surveys). Respondents were asked to indicate the specific gastrointestinal and other symptoms, if any, they had experienced in the previous 3-month period and to document any significant stressors experienced. The Manitoba IBD Index was used to categorize active versus inactive disease. RESULTS: In any 3-month period, participants with Crohn's disease, compared with those with ulcerative colitis (UC), reported more diarrhea (63% vs 38%), fatigue (54% vs 33%), abdominal pain (47% vs 32%), aching joints (42% vs 29%), painful joints (24% vs 16%), fever or night sweats (24% vs 15%), nausea/ vomiting (18% vs 7%), and reductions in appetite (19% vs 11%) (P < .001 for each symptom). Individuals with ulcerative colitis complained more of stool mucous or blood than those with Crohn's disease (27% vs 17%; P < .001). In periods of inactive disease, participants still experienced symptoms such as aching joints (17%), fatigue (15%), diarrhea (13%), or abdominal pain (9%). In any 3-month period, approximately 50% experienced some type of stress; family stress was the most commonly reported form, followed by work or school and financial stress. CONCLUSIONS: Diarrhea and fatigue are the 2 most common symptoms of individuals with IBD. Those with inactive disease still report symptoms. Almost 50% of participants reported significant stress in any 3-month period, but the primary types were everyday life stressors more so than health-related stress.