期刊
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING
卷 11, 期 6, 页码 284-291出版社
MARK ALLEN GROUP
DOI: 10.12968/ijpn.2005.11.6.18296
关键词
Place of death; Choice; Decision making; Child; Palliative care
类别
Aim To explore retrospectively the decisions made by parents regarding their choice of place of care at time of death for their child with advanced cancer. Design Cross-sectional descriptive study. Analysis Interpretive phenomenological analysis. Sample Parents of five children who had died of advanced cancer, whose care was overseen by the participating paediatric oncology centre in the southeast of England. Three children died at home, and two in hospital. Results Seven themes were identified, four of which will be discussed: valuing time left; needing to feel safe and secure; we didn't know what to expect; and the difference between specialist and non-specialist staff. Families' decisions were instinctive or intuitive rather than a calculated weighing up of options. Families identified aspects of care that were both valuable and could be improved. Conclusion Parents value the time that their children have to live when they know that their child's disease is incurable. Decisions around place of care are just that, decisions around place of care not place of death. Families valued the same types of support from staff regardless of the setting in which care was provided and found the same deficiencies difficult.
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