期刊
出版社
WILEY
DOI: 10.1002/trc2.12076
关键词
African American; Alzheimer's disease; Black disparities; narrative; recruitment; research; story-telling
资金
- National Institutes of Health, National Institute on Aging [R01AG054518, P50AG005133]
Introduction: African American/Black adults are severely underrepresented in basic, clinical, and behavioral research studies in Alzheimer's disease and related disorders (ADRD). Innovative, evidence-based, and culturally salient strategies can maximize the recruitment of African American/Black adults into ADRD research. Methods: We conducted and analyzed semi-structured interviews to capture the research participation stories of African American/Black participants and study partners from the University of Pittsburgh's Alzheimer's Disease Research Center. The themes and messaging principles generated through this process informed the development of video- and text-based materials that were evaluated for community member acceptance using focus groups. Results: Focus group individuals (N = 36) generally favorably rated the video and text materials, characterizing them as interesting, realistic, and convincing. Discussion: Capturing the narratives of African American/Black research participants is a critical component to developing culturally relevant materials for broader dissemination and is essential to advancing beyond information-only recruitment approaches. which tend to rely disproportionately on negative messages.
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