期刊
AUSTRALIAN OCCUPATIONAL THERAPY JOURNAL
卷 57, 期 2, 页码 127-136出版社
WILEY
DOI: 10.1111/j.1440-1630.2009.00817.x
关键词
disability; health behaviour; parenting; quality of life; self-care
Aim: Children with a disability are reliant on a capable, healthy and well-resourced carer. Most often the child's mother provides the care that ensures the child's health, service access and community integration are attended to successfully. Through in-depth interviews with mothers and professionals, this study explores issues that challenge the mother's performance in her very important role as a caregiver. Method: Qualitative methodology(n = 8)resulted in verbatim transcriptions that were analysed and categorised, and common themes were derived. Results: Participants identified a multitude of challenges related to issues surrounding the child, maternal characteristics, the family, services and the community. Emotional distress and mental health issues were reported. Conclusion: Many aspects of caregiving can be relentless and challenging. Occupational therapy clinical implications aimed at supporting mothers and their children are discussed.
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