Aphasia as identity theft: Theory and practice

Background: The impact of aphasia on identity is frequently acknowledged, but there have been few theoretical or research publications focusing on identity as an explanatory construct in understanding quality of life issues for persons with aphasia and their significant others. This article is abbreviated from a keynote address at the 2004 Clinical Aphasiology Conference. Aims: The purpose of this article is to review concepts from the sociocultural literature that bear upon social identity and can be applied to an understanding of short- and long-term consequences of aphasia. Main Contribution: Theoretical premises related to social identity are outlined, then applied to the life experiences of persons with aphasia and their significant others. The clinical relevance of such concepts is illustrated through specific examples. Particular attention is paid to the recognition work involved in moving on with life in the context of aphasia. The implications of the identity construct are also addressed through questions raised for both researchers and clinicians. Conclusions: An understanding of identity provides a useful lens for viewing and improving quality of life for persons touched by aphasia. In particular, clinical work and research questions can be clarified through consideration both of identity as competent and of the mediation of identity through social interaction with social others. It is important to recognise that persons with aphasia and their significant others are involved in renegotiation of identity, and the success of their recognition work may be a major predictor of adaptation to aphasia.