相关参考文献
注意：仅列出部分参考文献，下载原文获取全部文献信息。Population studies: return of research results and incidental findings Policy Statement
Bartha Maria Knoppers et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2013)
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
Flavia M. Facio et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2013)
Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing
Matthew J. Westbrook et al.
GENETICS IN MEDICINE (2013)
Return of research results from genomic biobanks: cost matters
Marianna J. Bledsoe et al.
GENETICS IN MEDICINE (2013)
An informatics approach to analyzing the incidentalome
Jonathan S. Berg et al.
GENETICS IN MEDICINE (2013)
Secondary variants and human subjects research
Leslie G. Biesecker
GENETICS IN MEDICINE (2013)
Return of results in genomic biobank research: ethics matters
Susan M. Wolf
GENETICS IN MEDICINE (2013)
Incidental findings in clinical genomics: a clarification
Michael Watson
GENETICS IN MEDICINE (2013)
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing
Robert C. Green et al.
GENETICS IN MEDICINE (2013)
Making the Transition to a Learning Health Care System
Christine Grady et al.
HASTINGS CENTER REPORT (2013)
An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics
Ruth R. Faden et al.
HASTINGS CENTER REPORT (2013)
The Research-Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight
Nancy E. Kass et al.
HASTINGS CENTER REPORT (2013)
Patient Autonomy and Incidental Findings in Clinical Genomics
Susan M. Wolf et al.
SCIENCE (2013)
Ethics and Genomic Incidental Findings
Amy L. McGuire et al.
SCIENCE (2013)
Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives
Ben Chan et al.
AMERICAN JOURNAL OF BIOETHICS (2012)
Disclosing Decedents' Research Results to Relatives Violates the HIPAA Privacy Rule
Mark A. Rothstein
AMERICAN JOURNAL OF BIOETHICS (2012)
Secondary Variants in Individuals Undergoing Exome Sequencing: Screening of 572 Individuals Identifies High-Penetrance Mutations in Cancer-Susceptibility Genes
Jennifer J. Johnston et al.
AMERICAN JOURNAL OF HUMAN GENETICS (2012)
Offering aggregate results to participants in genomic research: opportunities and challenges
Laura M. Beskow et al.
GENETICS IN MEDICINE (2012)
Engaging children in genomics research: decoding the meaning of assent in research
Benjamin S. Wilfond et al.
GENETICS IN MEDICINE (2012)
Taxonomizing, sizing, and overcoming the incidentalome
Isaac S. Kohane et al.
GENETICS IN MEDICINE (2012)
Intersection of biobanking and clinical care: should discrepant diagnoses and pathological findings be returned to research participants?
Nicole C. Lockhart et al.
GENETICS IN MEDICINE (2012)
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
Juli Murphy Bollinger et al.
GENETICS IN MEDICINE (2012)
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
Stephanie M. Fullerton et al.
GENETICS IN MEDICINE (2012)
Taking aims seriously: repository research and limits on the duty to return individual research findings
Pilar Ossorio
GENETICS IN MEDICINE (2012)
Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project
Leslie G. Biesecker
GENETICS IN MEDICINE (2012)
The legal risks of returning results of genomics research
Ellen Wright Clayton et al.
GENETICS IN MEDICINE (2012)
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks
Ma'n H. Zawati et al.
GENETICS IN MEDICINE (2012)
Exploring concordance and discordance for return of incidental findings from clinical sequencing
Robert C. Green et al.
GENETICS IN MEDICINE (2012)
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
Susan M. Wolf et al.
GENETICS IN MEDICINE (2012)
Points to consider in the clinical application of genomic sequencing
GENETICS IN MEDICINE (2012)
Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility
Christopher A. Cassa et al.
GENOME RESEARCH (2012)
A public resource facilitating clinical use of genomes
Madeleine P. Ball et al.
PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA (2012)
Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time
Jonathan S. Berg et al.
GENETICS IN MEDICINE (2011)
Children and biobanks: a review of the ethical and legal discussion
Kristien Hens et al.
HUMAN GENETICS (2011)
Familial Communication of Research Results: A Need to Know?
Lee Black et al.
JOURNAL OF LAW MEDICINE & ETHICS (2011)
Research Practice and Participant Preferences: The Growing Gulf
S. B. Trinidad et al.
SCIENCE (2011)
Human Non-Subjects Research: Privacy and Compliance
Kyle Bertram Brothers et al.
AMERICAN JOURNAL OF BIOETHICS (2010)
Custodianship as an Ethical Framework for Biospecimen-Based Research
Rihab Yassin et al.
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION (2010)
Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants Updated Guidelines From a National Heart, Lung, and Blood Institute Working Group
Richard R. Fabsitz et al.
CIRCULATION-CARDIOVASCULAR GENETICS (2010)
Principles of Human Subjects Protections Applied in an Opt-Out, De-identified Biobank
Jill Pulley et al.
CTS-CLINICAL AND TRANSLATIONAL SCIENCE (2010)
Offering Individual Genetic Research Results: Context Matters
Laura M. Beskow et al.
SCIENCE TRANSLATIONAL MEDICINE (2010)
PROSPECTIVE BIOREPOSITORY PARTICIPANTS' PERSPECTIVES ON ACCESS TO RESEARCH RESULTS
Laura M. Beskow et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2009)
Public Expectations for Return of Results from Large-Cohort Genetic Research
Juli Murphy et al.
AMERICAN JOURNAL OF BIOETHICS (2008)
Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study.
Mary M. Jenkins et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS (2008)
Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion
David Kaufman et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS (2008)
Subjects matter: a survey of public opinions about a large genetic cohort study
David Kaufman et al.
GENETICS IN MEDICINE (2008)
Incidental findings and ancillary-care obligations
Henry S. Richardson
JOURNAL OF LAW MEDICINE & ETHICS (2008)
Managing incidental findings in human subjects research: Analysis and recommendations
Susan M. Wolf et al.
JOURNAL OF LAW MEDICINE & ETHICS (2008)
The return of research results to participants: Pilot questionnaire of adolescents and parents of children with cancer
C. V. Fernandez et al.
PEDIATRIC BLOOD & CANCER (2007)
The ancillary-care responsibilities of medical researchers - An ethical framework for thinking about the clinical care that researchers owe their subjects
HS Richardson et al.
HASTINGS CENTER REPORT (2004)
Management of the clinically inapparent adrenal mass (incidentaloma)
MM Grumbach et al.
ANNALS OF INTERNAL MEDICINE (2003)
The debate over research on stored biological samples -: What do sources think?
D Wendler et al.
ARCHIVES OF INTERNAL MEDICINE (2002)
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