期刊
INTERNATIONAL JOURNAL OF CIRCUMPOLAR HEALTH
卷 66, 期 1, 页码 19-30出版社
INTERNATIONAL ASSOCIATION CIRCUMPOLAR HEALTH PUBLISHERS
DOI: 10.3402/ijch.v66i1.18221
关键词
Yup'ik Eskimo; confidentiality; family-based recruitment; reporting research results; group harm
资金
- NCRR NIH HHS [P20 RR16430] Funding Source: Medline
Objectives. Dissemination of research results to communities builds capacity of the community to understand and utilize the results. The objective of this manuscript was to propose a culturally appropriate approach to disseminate complex disease genetics research findings in small Alaska Native communities. Study Design. The Center for Alaska Native Health Research is a community-based participatory research project (CBPR) directed at understanding the interactions between genetic, nutritional and psychosocial risk factors for obesity, diabetes, and cardiovascular disease in Yup'ik Eskimos. Methods. We have consulted with regional healthcare providers, tribal leaders, and university-, local-, and national-institutional review boards to identify potential mechanisms for sharing population-based genetics research results or progress. Results. We propose a six step CBPR-approach to conducting genetics research in isolated identifiable communities. This CPBR-approach includes generating a common research question, determining community interest, recruitment, capacity building, sharing power and control, avoiding group harm, and development of culturally appropriate dissemination procedures. Conclusions. Research scientists and community members should both benefit from population-based genetics research. Although we are just beginning our discussions with regard to sharing genetics research progress and findings, we believe that it is essential move forward as co-researchers in the CBPR enterprise.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据