期刊
JOURNAL OF PEDIATRIC PSYCHOLOGY
卷 34, 期 2, 页码 187-194出版社
OXFORD UNIV PRESS INC
DOI: 10.1093/jpepsy/jsn065
关键词
adherence; adolescents; children; HIV; AIDS; parents
资金
- United States National Institute of Allergy and Infectious Diseases
- National Institute of Child Health and Human Development
- Statistical and Data Analysis Center (SDAC) of the Pediatric AIDS Clinical Trials Group at Harvard School of Public Health
- National Institue of Allergy and Infectious Diseases [5 U01 AI41110, U01AI068632, 1 U01 AI068616]
ObjectiveThe purpose of the study is to describe allocation of responsibility for illness management in families of children and adolescents perinatally infected with HIV.MethodsA total of 123 youth (ages 818) and caregivers completed family responsibility and medication adherence questionnaires as part of a substudy of Pediatric AIDS Clinical Trials Group protocol 219c.ResultsApproximately one-fourth of the youth reported being fully responsible for taking medications. A smaller percentage of caregivers reported full youth responsibility. Older youth and caregivers of older youth reported higher degree of youth responsibility for medication-related tasks, though age was unrelated to adherence. Caregiver report of greater responsibility for medications was associated with better adherence.ConclusionsCaregivers are likely to transition responsibility for HIV care to older youth but this transition was not always successful as evidenced by poor medication adherence. Interventions supporting successful transition may improve adherence and subsequently health outcomes in pediatric HIV.
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