期刊
HOME HEALTH CARE MANAGEMENT AND PRACTICE
卷 25, 期 5, 页码 217-223出版社
SAGE PUBLICATIONS INC
DOI: 10.1177/1084822313487984
关键词
dementia; home health care services; focus group interview; relatives; content analyses; qualitative
类别
资金
- Norwegian Directorate of Health
The large number of individuals affected by dementia entails major challenges for home health care (HHC) and dementia-affected families. The aim of the study was to explore and describe relatives' experiences of people with dementia living at home and to reveal the relatives' needs for support. Focus group interviews (10 people) were used for data collection. The analysis was qualitative content analysis. The results show that relatives are unable to escape the situation and that the dignity of the person with dementia is threatened. Relatives experience a sense of powerlessness due to fragmented services. The continuity of HHC services constitutes a major challenge. Personnel should focus more on ethical considerations and on dialogue between formal and informal caregivers.
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