4.2 Article

10 Years Later: Assessing the Impact of Public Health Efforts on the Collection of Family Health History

期刊

AMERICAN JOURNAL OF MEDICAL GENETICS PART A
卷 167, 期 9, 页码 2026-2033

出版社

WILEY
DOI: 10.1002/ajmg.a.37139

关键词

family health history; genetics; clinical genetics; health information technology; type 2 diabetes

资金

  1. Biomedical Informatics Center at the Medical University of South Carolina [UL1TR000062]
  2. Intermountain Healthcare Foundation
  3. Primary Children's Hospital Foundation

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In 2004, a nationwide survey found that the majority (96.3%) of Americans believed their family health history (FHx) was important for their own health; however, only a third (29.8%) of respondents had ever actively collected this information. Over the past decade, government agencies, advocacy groups, professional societies, and healthcare provider organizations have aimed to improve the collection rates and utilization of FHx. This study assesses the current attitudes, knowledge, and practices of Americans regarding their FHx and whether the interventions over the past 10 years have led to any FHx-related changes. We conducted a nationwide survey of 5,258 respondents using the same measures used in the 2004 survey. Overall, there was little change in Americans knowledge and use of FHx information. While there was a statistically significant increase in respondents who have actively collected their FHx (36.9%), respondents know roughly the same or less about his or her FHx today. Furthermore, only a small fraction (2.6%) had ever collected their FHx using a web-based FHx tool. Several factors were identified which influence whether an individual actively collects his or her FHx. New FHx tools and approaches may be necessary to promote clinically meaningful improvement in FHx collection among patients. (C) 2015 Wiley Periodicals, Inc.

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