期刊
JOURNAL OF PEDIATRIC SURGERY
卷 53, 期 4, 页码 841-846出版社
W B SAUNDERS CO-ELSEVIER INC
DOI: 10.1016/j.jpedsurg.2017.05.009
关键词
Colostomy; Children; Social impact; Public health; Developing country; Anorectal malformation; Medical brigade
资金
- foundations of the Fundacion MAR
- association Ruth Paz
- association Helping Hands for Anorectal Malformations International
Introduction: To describe the social impact of a colostomy on indigent families and affected children with anorectal malformations (ARM) or Hirschsprung's disease (HD) in San Pedro Sula, Honduras, we specifically targeted very low-income households that attended an international medical brigade for ARM and HD in 2016. Methods: The impact of a colostomy on the families and children's daily lifewas analyzed by personal interviews with a questionnaire. Results: Twenty familieswith childrenwere included in the study. Children's age rangedfrom5months to27 years (median 2.31). Annual income was reported to be less than $500 USD in 42.8%. Impairment of daily family life by the colostomy was reported in 85%. Parents of preschool children younger than 7 years are more affected than parents of older children, whereas children older than 7 years reported on more social problems. Moreover, 50% of the school-aged children did not attend school owing to issues directly related to their colostomy. Discussion: Colostomies for children in the low middle-income country Honduras have significant social and economic implications for low-income families. In ARM and HD, medical brigades can offer help for definitive surgical repair to overcome and shorten the period of a colostomy presence to improve physical and psychosocial impairment, especially when performed before the children reach the school age. Type of study: Cost Effectiveness Study. Level of evidence: II. (c) 2017 Elsevier Inc. All rights reserved.
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