期刊
CLEFT PALATE CRANIOFACIAL JOURNAL
卷 54, 期 5, 页码 540-554出版社
SAGE PUBLICATIONS INC
DOI: 10.1597/15-292
关键词
cleft lip; cleft palate; continuous quality improvement; learning health care; outcomes; patient-reported outcomes; value-based health care
资金
- Plastic Surgical Foundation Pilot Research Grant [273938]
- 69th Annual Meeting of the American Cleft Palate-Craniofacial Association (ACPA) in San Jose, California
- 12th International Congress in Orlando, Florida
- 71st Annual Meeting of the ACPA in Indianapolis, Indiana
- Boston Children's Hospital
- Children's Hospital of Philadelphia
- Texas Children's Hospital
- Great Ormond Street Hospital
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families- and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international, multidisciplinary working group with regard to which outcomes a typical cleft team could track, how those outcomes could be measured and recorded, and what strategies may be employed to sustainably implement a system for prospective data collection. It is only by agreeing on a common, standard set of outcome measures for the comprehensive appraisal of cleft care that intercenter comparisons can become possible. This is important for quality-improvement endeavors, comparative effectiveness research, and value-based health-care reform.
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