相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。From 'trust us' to participatory governance: Deliberative publics and science policy
Michael M. Burgess
PUBLIC UNDERSTANDING OF SCIENCE (2014)
The Mayo Clinic Biobank: A Building Block for Individualized Medicine
Janet E. Olson et al.
MAYO CLINIC PROCEEDINGS (2013)
Potential Bias in the Bank: What Distinguishes Refusers, Nonresponders and Participants in a Clinic-Based Biobank?
J. L. Ridgeway et al.
PUBLIC HEALTH GENOMICS (2013)
How Variability in the Institutional Review Board Review Process Affects Minimal-Risk Multisite Health Services Research
Laura A. Petersen et al.
ANNALS OF INTERNAL MEDICINE (2012)
Toward a roadmap in global biobanking for health
Jennifer R. Harris et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2012)
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
Stephanie M. Fullerton et al.
GENETICS IN MEDICINE (2012)
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
Susan M. Wolf et al.
GENETICS IN MEDICINE (2012)
An Australian Approach to the Policy Translation of Deliberated Citizen Perspectives on Biobanking
Caron Molster et al.
PUBLIC HEALTH GENOMICS (2012)
Balancing the Risks and Benefits of Genomic Data Sharing: Genome Research Participants' Perspectives
J. M. Oliver et al.
PUBLIC HEALTH GENOMICS (2012)
Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation
Kieran C. O'Doherty et al.
SOCIAL SCIENCE & MEDICINE (2012)
Identifiability in biobanks: models, measures, and mitigation strategies
Bradley Malin et al.
HUMAN GENETICS (2011)
Informed Consent in Genomics and Genetic Research
Amy L. McGuire et al.
ANNUAL REVIEW OF GENOMICS AND HUMAN GENETICS, VOL 11 (2010)
Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium
Ellen Wright Clayton et al.
GENETICS IN MEDICINE (2010)
Structuring Public Engagement for Effective Input in Policy Development on Human Tissue Biobanking
K. C. O'Doherty et al.
PUBLIC HEALTH GENOMICS (2010)
Using computer agents to explain medical documents to patients with low health literacy
Timothy W. Bickmore et al.
PATIENT EDUCATION AND COUNSELING (2009)
Informed consent in biobank research: A deliberative approach to the debate
David M. Secko et al.
SOCIAL SCIENCE & MEDICINE (2009)
Community Consultation and Communication for a Population-Based DNA Biobank: The Marshfield Clinic Personalized Medicine Research Project
Catherine A. McCarty et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2008)
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
Laura M. Beskow et al.
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION (2008)
Managing incidental findings in human subjects research: Analysis and recommendations
Susan M. Wolf et al.
JOURNAL OF LAW MEDICINE & ETHICS (2008)
Trends in ethical and legal frameworks for the use of human biobanks
A. Cambon-Thomsen et al.
EUROPEAN RESPIRATORY JOURNAL (2007)
National population-based biobanks for genetic research
Helen Swede et al.
GENETICS IN MEDICINE (2007)
Interventions to improve research participants' understanding in informed consent for research - A systematic review
J Flory et al.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2004)