In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

African-Americans face higher rates of Alzheimer's disease and other related dementias than any other group. With cases of Alzheimer's disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer's disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.

Automated summary

African-Americans have higher rates of Alzheimer's disease and related dementias, leading to a need for culturally tailored caregiver programs. While initial results did not show significant knowledge increase, a more detailed analysis indicated success in changing caregivers' attitudes and behaviors towards the disease. The findings provide guidance for future interventions and enhancements to existing programs.