期刊
DIGITAL HEALTH
卷 8, 期 -, 页码 -出版社
SAGE PUBLICATIONS LTD
DOI: 10.1177/20552076221089792
关键词
Patient-reported outcome (PRO); patient experience; patient perspective; citizen-HCP consultation; qualitative study; diabetes; municipality
类别
资金
- Danish Center for Health Informatics
- Department of Planning, Aalborg University
- Danish Health Data Authority
This study examined the experiences of newly diagnosed type-2 diabetes patients when using a newly developed patient-reported outcome (PRO) questionnaire in clinical practice. The PRO questionnaire prompted reflections, motivated self-management activities, and facilitated structured and effective conversations between patients and healthcare professionals. However, the questionnaire lacked response options, leading to concerns and uncertainty among patients. Overall, the informants found the PRO questionnaire and data meaningful and useful.
Objective The aim of this study was to examine the experiences of citizens with newly diagnosed type-2 diabetes when using a newly developed and implemented patient-reported outcome (PRO) questionnaire as part of clinical practice in a municipal setting. Specifically, the citizens' experiences in completing the PRO questionnaire and using the PRO data in consultations were examined. Methods The study was based on participant observations and semi-structured interviews and conducted at the Centre for Diabetes in Copenhagen and online. Participants were recruited deliberately to represent different cases of citizens with type-2 diabetes. Ten citizens were observed during consultation with an healthcare professional (HCP) and subsequently interviewed. The interviews were recorded as audio or video and transcribed verbatim. A thematic analysis was performed on the basis of previously described guidelines. Results The PRO instigated reflections and enlightened citizens on disease-specific matters and motivated citizens to engage in self-management activities. During the citizen-HCP consultations, the PRO data prepared the actors before the meeting and enabled structured, effective and relevant conversations. However, the PRO questionnaire lacked response options, triggered citizen concerns about future health conditions and made them unsure if their answers were correct and aware that they lacked disease-specific knowledge. The experiences were linked to the citizens' situation as newly diagnosed with type-2 diabetes. Conclusion The informants found the PRO questionnaire and data meaningful and useful. However, adjustments are needed if the PRO instrument is to resemble the disease situation of citizens with newly diagnosed type-2 diabetes.
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