4.2 Article

Developing the FEEDS toolkit of parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: findings from a Delphi survey and stakeholder consultation workshops

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Article Health Care Sciences & Services

Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study

Jeremy Parr et al.

Summary: This study aimed to investigate interventions that can be delivered at home by parents to improve eating, drinking and swallowing in young children with neurodisability. The research identified significant limitations in available evidence regarding the effectiveness of interventions and tools to measure outcomes. Stakeholder workshops and surveys indicated a wide range of interventions recommended by NHS health professionals, with varying provision reported by parents and professionals.

HEALTH TECHNOLOGY ASSESSMENT (2021)

Article Pediatrics

Children with neurodisability and feeding difficulties: a UK survey of parent-delivered interventions

Helen Taylor et al.

Summary: This study identified the current UK practice of parent-delivered interventions for eating, drinking, and swallowing difficulties in children with neurodisability. A variety of professionals support these children, recommending interventions such as food and drink modification and changes to mealtime environment. Professionals believed these interventions to be effective, with better general health and improved nutrition as key outcomes valued by both professionals and parents. Further research is needed to fully evaluate the effectiveness of these interventions and move towards evidence-based best practices.

BMJ PAEDIATRICS OPEN (2021)

Article Psychology, Developmental

Improving participation outcomes and interventions in neurodisability: co-designing future research

J. McAnuff et al.

CHILD CARE HEALTH AND DEVELOPMENT (2017)

Article Clinical Neurology

Towards a definition of neurodisability: a Delphi survey

Christopher Morris et al.

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY (2013)