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Article
Public, Environmental & Occupational Health
Phillip H. Roth et al.
Summary: In this article, we examine how the term "long COVID" coined by patients became widely accepted in public discourses. We show how subjective evidence shared online played a crucial role in recognizing and understanding long COVID as a key feature of the pandemic. Our study investigates how stakeholders utilized the term in online media to create illness and group identity, while also distinguishing the personal experience of long COVID from other sources. We argue that the mobilization of subjective evidence filled knowledge gaps and legitimized long COVID as a concern for official measures against the pandemic.
SOCIAL SCIENCE & MEDICINE
(2022)
Review
Medicine, General & Internal
Karen Macpherson et al.
Summary: This qualitative systematic review explores the experiences of people living with long COVID and their perceptions of healthcare services available to them. The findings suggest that long COVID is a heterogeneous condition with a variety of physical and emotional consequences. It is recommended that greater knowledge and understanding of long COVID is needed by various stakeholders, and that the design of emerging long COVID services should take into account the experiences of patients.
Article
Public, Environmental & Occupational Health
Elisa Liberati et al.
Summary: This study examines the experiences of accessing mental health services during the first wave of the COVID-19 pandemic in England, using the concept of candidacy. The findings indicate that the pandemic-induced service changes had significant effects on people's eligibility for care, reshaping their perceptions of what issues deserved attention and their entitlement to care. Healthcare professionals faced complex decisions and ethical dilemmas regarding care provision, which could impact equity.
SOCIAL SCIENCE & MEDICINE
(2022)
Article
Biochemistry & Molecular Biology
Anuradhaa Subramanian et al.
Summary: A retrospective analysis of primary care records in the United Kingdom reveals individual symptoms associated with SARS-CoV-2 infections, which persisted for 12 weeks or more after infection, as well as risk factors associated with developing long COVID.
Article
Public, Environmental & Occupational Health
Felicity Callard et al.
Summary: Patients collectively created "Long Covid" and similar terms during the early months of the pandemic, demonstrating a longer and more complex illness course than initially reported. They used social media to spread their experiences and influence formal clinical and policy channels, showing how patients can contribute to changing the understanding and treatment of COVID-19.
SOCIAL SCIENCE & MEDICINE
(2021)
Editorial Material
Medicine, General & Internal
Daniel M. Altmann et al.
BMJ-BRITISH MEDICAL JOURNAL
(2021)
Article
Public, Environmental & Occupational Health
Alex Rushforth et al.
Summary: The narratives of long Covid use storytelling devices to vividly describe the strange and frightening new illness that patients are experiencing, revealing the challenges they face in interactions with healthcare professionals. Patients share their narratives on social media, gaining resonance and support.
SOCIAL SCIENCE & MEDICINE
(2021)
Article
Public, Environmental & Occupational Health
Olaug S. Lian et al.
Summary: The study analyzed 20 clinical consultations between general practitioners and patients in England to understand how they navigate medical and existential uncertainty. It was found that both patients and GPs tend to conceptualize uncertainty indirectly to prevent clinical errors, while also revealing the interconnectedness between medical and existential dimensions of uncertainty.
SOCIAL SCIENCE & MEDICINE
(2021)
Article
Health Policy & Services
Sue Ziebland et al.
Summary: This article discusses the development of an online resource that publishes findings from narrative interview studies, which has evolved into an international collaboration involving 14 countries worldwide. Over the past two decades, the DIPEx International qualitative studies have expanded beyond patient information and support to include learning, teaching, insights, service improvement, and cross-national comparisons. The collaboration aims to reflect diverse discourses on illness, health, and care, offering unique international resources for promoting understanding and learning from people's experiences with illness and care.
JOURNAL OF HEALTH SERVICES RESEARCH & POLICY
(2021)
Article
Health Care Sciences & Services
Susan Kirkpatrick et al.
HEALTH EXPECTATIONS
(2018)
Article
Public, Environmental & Occupational Health
Sara Macdonald et al.
SOCIAL SCIENCE & MEDICINE
(2016)
Article
Public, Environmental & Occupational Health
Sally Wyke et al.
SOCIAL SCIENCE & MEDICINE
(2013)
Article
Public, Environmental & Occupational Health
C Emslie et al.
SOCIOLOGY OF HEALTH & ILLNESS
(2001)