Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy

Article Public, Environmental & Occupational Health

The contested meaning of long COVID - Patients, doctors, and the politics of subjective evidence

Phillip H. Roth et al.

Summary: In this article, we examine how the term "long COVID" coined by patients became widely accepted in public discourses. We show how subjective evidence shared online played a crucial role in recognizing and understanding long COVID as a key feature of the pandemic. Our study investigates how stakeholders utilized the term in online media to create illness and group identity, while also distinguishing the personal experience of long COVID from other sources. We argue that the mobilization of subjective evidence filled knowledge gaps and legitimized long COVID as a concern for official measures against the pandemic.

SOCIAL SCIENCE & MEDICINE (2022)

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Review Medicine, General & Internal

Experiences of living with long COVID and of accessing healthcare services: a qualitative systematic review

Karen Macpherson et al.

Summary: This qualitative systematic review explores the experiences of people living with long COVID and their perceptions of healthcare services available to them. The findings suggest that long COVID is a heterogeneous condition with a variety of physical and emotional consequences. It is recommended that greater knowledge and understanding of long COVID is needed by various stakeholders, and that the design of emerging long COVID services should take into account the experiences of patients.

BMJ OPEN (2022)

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Article Public, Environmental & Occupational Health

Qualitative study of candidacy and access to secondary mental health services during the COVID-19 pandemic

Elisa Liberati et al.

Summary: This study examines the experiences of accessing mental health services during the first wave of the COVID-19 pandemic in England, using the concept of candidacy. The findings indicate that the pandemic-induced service changes had significant effects on people's eligibility for care, reshaping their perceptions of what issues deserved attention and their entitlement to care. Healthcare professionals faced complex decisions and ethical dilemmas regarding care provision, which could impact equity.

SOCIAL SCIENCE & MEDICINE (2022)

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Article Biochemistry & Molecular Biology

Symptoms and risk factors for long COVID in non-hospitalized adults

Anuradhaa Subramanian et al.

Summary: A retrospective analysis of primary care records in the United Kingdom reveals individual symptoms associated with SARS-CoV-2 infections, which persisted for 12 weeks or more after infection, as well as risk factors associated with developing long COVID.

NATURE MEDICINE (2022)

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Article Public, Environmental & Occupational Health

How and why patients made Long Covid

Felicity Callard et al.

Summary: Patients collectively created "Long Covid" and similar terms during the early months of the pandemic, demonstrating a longer and more complex illness course than initially reported. They used social media to spread their experiences and influence formal clinical and policy channels, showing how patients can contribute to changing the understanding and treatment of COVID-19.

SOCIAL SCIENCE & MEDICINE (2021)

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Editorial Material Medicine, General & Internal

Decoding the unknowns in long covid

Daniel M. Altmann et al.

BMJ-BRITISH MEDICAL JOURNAL (2021)

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Article Public, Environmental & Occupational Health

Long Covid-The illness narratives

Alex Rushforth et al.

Summary: The narratives of long Covid use storytelling devices to vividly describe the strange and frightening new illness that patients are experiencing, revealing the challenges they face in interactions with healthcare professionals. Patients share their narratives on social media, gaining resonance and support.

SOCIAL SCIENCE & MEDICINE (2021)

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Article Public, Environmental & Occupational Health

Negotiating uncertainty in clinical encounters: A narrative exploration of naturally occurring primary care consultations

Olaug S. Lian et al.

Summary: The study analyzed 20 clinical consultations between general practitioners and patients in England to understand how they navigate medical and existential uncertainty. It was found that both patients and GPs tend to conceptualize uncertainty indirectly to prevent clinical errors, while also revealing the interconnectedness between medical and existential dimensions of uncertainty.

SOCIAL SCIENCE & MEDICINE (2021)

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Article Health Policy & Services

Polyphonic perspectives on health and care: Reflections from two decades of the DIPEx project

Sue Ziebland et al.

Summary: This article discusses the development of an online resource that publishes findings from narrative interview studies, which has evolved into an international collaboration involving 14 countries worldwide. Over the past two decades, the DIPEx International qualitative studies have expanded beyond patient information and support to include learning, teaching, insights, service improvement, and cross-national comparisons. The collaboration aims to reflect diverse discourses on illness, health, and care, offering unique international resources for promoting understanding and learning from people's experiences with illness and care.

JOURNAL OF HEALTH SERVICES RESEARCH & POLICY (2021)

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Article Health Care Sciences & Services