相关参考文献
注意：仅列出部分参考文献，下载原文获取全部文献信息。WFH Guidelines for the Management of Hemophilia, 3rd edition
Alok Srivastava et al.
HAEMOPHILIA (2020)
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company
Charles R. M. Hay et al.
HAEMOPHILIA (2020)
Hemophilia trials in the twenty-first century: Defining patient important outcomes
Barbara A. Konkle et al.
RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS (2019)
Pattern of bleeding in a large prospective cohort of haemophilia A patients: A three-year follow-up of the AHEAD (Advate in HaEmophilia A outcome Database) study
K. Khair et al.
HAEMOPHILIA (2018)
Real-world comparative analysis of bleeding complications and health-related quality of life in patients with haemophilia A and haemophilia B
Jason Booth et al.
HAEMOPHILIA (2018)
Safety and efficacy of BAY 94-9027, a prolonged-half-life factor VIII
M. T. Reding et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2017)
Treatment adherence in hemophilia
Courtney D. Thornburg et al.
PATIENT PREFERENCE AND ADHERENCE (2017)
The impact of sport on health status, psychological well-being and physical performance of adults with haemophilia
S. von Mackensen et al.
HAEMOPHILIA (2016)
Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era
M. Recht et al.
HAEMOPHILIA (2016)
Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action
Anton Hoos et al.
THERAPEUTIC INNOVATION & REGULATORY SCIENCE (2015)
An overview of current trends and gaps in patient-reported outcome measures used in haemophilia
Jennifer Pocoski et al.
EUROPEAN JOURNAL OF HAEMATOLOGY (2014)
Haemophilia Experiences, Results and Opportunities (HERO) Study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia
F. R. M. Y. Cassis et al.
HAEMOPHILIA (2014)
Definitions in hemophilia: communication from the SSC of the ISTH
V. S. Blanchette et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2014)
Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents
S. von Mackensen et al.
HAEMOPHILIA (2013)
Why should we care about quality of life in persons with haemophilia?
L. Aledort et al.
HAEMOPHILIA (2012)
The impact of sport on children with haemophilia
K. Khair et al.
HAEMOPHILIA (2012)
Overweight and Obesity in Hemophilia A Systematic Review of the Literature
Trisha E. Wong et al.
AMERICAN JOURNAL OF PREVENTIVE MEDICINE (2011)
Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)
M. Herdman et al.
QUALITY OF LIFE RESEARCH (2011)
VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia
N. Duncan et al.
HAEMOPHILIA (2010)
VERITAS-PRN: a new measure of adherence to episodic treatment regimens in haemophilia
N. A. Duncan et al.
HAEMOPHILIA (2010)
Measuring patient-reported outcomes in haemophilia clinical research
D. Globe et al.
HAEMOPHILIA (2009)
Challenges of Patient-Reported Outcome Assessment in Hemophilia Care-a State of the Art Review
Monika Bullinger et al.
VALUE IN HEALTH (2009)
Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia
A. Rentz et al.
HAEMOPHILIA (2008)
Hemophilia joint health score reliability study
P. Hilliard et al.
HAEMOPHILIA (2006)
Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List
FR van Genderen et al.
HAEMOPHILIA (2006)
Validity of the brief pain inventory for use in documenting the outcomes of patients with noncancer pain
S Keller et al.
CLINICAL JOURNAL OF PAIN (2004)
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