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Support needs of carers of cancer patients and the effects of the patient's age and cancer type on their needs

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ELSEVIER SCI LTD
DOI: 10.1016/j.ejon.2023.102468

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Age; Carer; Hematological malignancies; Supportive care needs; Unmet needs

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This study investigated the support needs of carers of cancer patients and how the patient's age and cancer type affect their needs. The study found that carers of older adults and patients with hematological malignancies require more support in various aspects of caregiving.
Purpose: This study aimed to investigate support needs of carers of cancer patients and the effects of the patient's age and cancer type on their needs.Methods: In this descriptive and comparative study, the data were collected from the carers (n = 120) of the patient admitted to inpatient and outpatient clinics of a university hospital between June 2021 and October 2022. Patient identification form, carer identification form, and Carer Support Needs Assessment Tool (CSNAT) were used for data collection. The comparisons of the support needs were done for the carers according to the patient's age (<65 versus >= 65 years) and cancer type (hematological malignancies versus solid tumors).Results: Caring duration (19.78 +/- 29.64 vs 10.33 +/- 18.77 months) and caring hours per week (47.58 &+/- 26.90 vs 32.75 +/- 25.75 h) were high in those caring for older adults. Carers of older adults need more support in providing personal care for their relatives (eg dressing, washing, toileting) (X2 = 8.000, p = 0.005). Carers of patients with hematological malignancies need more support in understanding their relative's illness (X2 = 6.136, p = 0.013), having time themselves in the day (X2 = 4.089, p = 0.043), managing their relative's symptoms, including giving medicines? (X2 = 5.263, p = 0.022), and their beliefs or spiritual concerns (X2 = 4.728, p = 0.030) compared to the carers of the patients with solid tumors.Conclusion: The support needs of the carers vary depending on the patient's age and cancer type. Carers of older adults and patients with hematological malignancies need more support.

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