4.6 Article

End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Article Health Care Sciences & Services

International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS

Franca Benini et al.

Summary: The standards in pediatric palliative care (PPC) have been redefined by an international group of experts, considering different settings, resources, and emerging challenges. The document outlines fundamental points and standards for a wider implementation of PPC worldwide.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2022)

Article Pediatrics

End of life in patients under the care of paediatric palliative care teams. Multicentre observational study

Maria Jose Pelaez Cantero et al.

Summary: This study aims to document the characteristics of patients who die in the care of pediatric palliative care teams in Spain. The study found that patients had a wide age range at death and substantial exposure to polypharmacy. Patients had late access to palliative care programs, and there should be an effort to introduce this care earlier.

ANALES DE PEDIATRIA (2022)

Review Pediatrics

Pediatric palliative care and end-of-life: a systematic review of economic health analyses

Denise Swei Lo et al.

Summary: This study systematically reviewed the health economic evidence on the care of children and adolescents with complex clinical conditions, comparing those included in palliative care at the end of life with those not included (control group). The results showed that participating in a palliative care program can lead to reduced health costs, indirect savings, and protection of patients from invasive procedures, surgeries, and costly therapies. Additionally, palliative care increases the frequency of deaths at home and improves quality of life.

REVISTA PAULISTA DE PEDIATRIA (2022)

Review Pediatrics

Healthcare interventions improving and reducing quality of life in children at the end of life: a systematic review

Veerle Piette et al.

Summary: This study provides a systematic review of healthcare interventions aimed at improving and decreasing quality of life (QOL) for children with serious illness at the end of life. Results suggest that patient-controlled symptom feedback and multidisciplinary palliative care teams with full-time support may effectively improve QOL for children at the end of life.

PEDIATRIC RESEARCH (2021)

Article Pediatrics

Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals

Lisa M. Verberne et al.

Summary: Preparation for future scenarios in pediatric palliative care is seen as complex and challenging by families and healthcare professionals. Anticipating the future involves goal-directed conversations, anticipated care, and guidance on the job, focusing on achieving individual care goals, organizing practical arrangements, and short-term anticipation in difficult situations.

EUROPEAN JOURNAL OF PEDIATRICS (2021)

Article Health Care Sciences & Services

Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making

Danai Papadatou et al.

Summary: The study found that parents make decisions about end-of-life care and death for their child through consensus, accommodation, imposition of professional decisions, or imposition of parents' decisions. Factors influencing these decisions include awareness of dying, parental caregiving competence, professional competence, views on symptom management, timing of decision-making, and the desire to be seen as a 'good parent'. Supporting parents in decision-making includes providing clear and honest information, recognizing their understanding of being 'good parents', and offering opportunities to enhance their caregiving skills.

PALLIATIVE MEDICINE (2021)

Article Health Care Sciences & Services

Palliative care integration indicators: an European regional analysis

Miguel Antonio Sanchez-Cardenas et al.

Summary: The study aimed to estimate the capacity of European countries to integrate palliative care into their health systems. Results showed that variable progress has been made, with most countries still in the process of integration.

BMJ SUPPORTIVE & PALLIATIVE CARE (2021)

Review Pediatrics

Predictors for place of death among children:A systematic review and meta-analyses of recent literature

Sanne Lausen Wolff et al.

EUROPEAN JOURNAL OF PEDIATRICS (2020)

Review Nursing

Home-Based End of Life Care for Children and their Families - A Systematic Scoping Review and Narrative Synthesis

Cari Malcolm et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2020)

Article Primary Health Care

Pediatric Palliative Care

Sarah Norris et al.

PRIMARY CARE (2019)

Article Health Care Sciences & Services

Barriers and facilitators to the implementation of a paediatric palliative care team

Lisa M. Verberne et al.

BMC PALLIATIVE CARE (2018)

Article Pediatrics

Place of death of children with complex chronic conditions: cross-national study of 11 countries

Cecilia Hakanson et al.

EUROPEAN JOURNAL OF PEDIATRICS (2017)

Article Health Care Sciences & Services

Let's Bring Her Home First.'' Patient Characteristics and Place of Death in Specialized Pediatric Palliative Home Care

Hans Ulrich Bender et al.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2017)

Article Health Care Sciences & Services

Comparing the Palliative Care Needs of Those With Cancer to Those With Common Non-Cancer Serious Illness

Doran Bostwick et al.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2017)

Article Health Care Sciences & Services

Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis

Stephen R. Connor et al.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2017)

Article Public, Environmental & Occupational Health

Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries

Lara Pivodic et al.

JOURNAL OF EPIDEMIOLOGY AND COMMUNITY HEALTH (2016)

Review Medicine, General & Internal

Association Between Palliative Care and Patient and Caregiver Outcomes A Systematic Review and Meta-analysis

Dio Kavalieratos et al.

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2016)

Editorial Material Pediatrics

Recent Experience Establishing a New Pediatric Palliative Care Team

Elissa G. Miller et al.

JOURNAL OF PEDIATRICS (2015)

Letter Medicine, General & Internal

A charter for the rights of the dying child

Franca Benini et al.

LANCET (2014)

Article Health Care Sciences & Services

Developing a Pediatric Palliative Care Service in a Large Urban Hospital: Challenges, Lessons, and Successes

Emily S. Edlynn et al.

JOURNAL OF PALLIATIVE MEDICINE (2013)

Review Pediatrics

Pediatric Advance Care Planning: A Systematic Review

Julia D. Lotz et al.

PEDIATRICS (2013)

Article Oncology

Place of death and hospital care for children who died of cancer in England, 1999-2006

Anjali Shah et al.

EUROPEAN JOURNAL OF CANCER (2011)

Review Oncology

Pediatric Palliative Care Provision Around the World: A Systematic Review

Caprice Knapp et al.

PEDIATRIC BLOOD & CANCER (2011)

Article Oncology

Impact of a Pediatric Palliative Care Program

Johannes Wolff et al.

PEDIATRIC BLOOD & CANCER (2010)

Article Health Care Sciences & Services

Looking Beyond Where Children Die: Determinants and Effects of Planning a Child's Location of Death

Veronica Dussel et al.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2009)

Review Medicine, General & Internal

Evidence for improving palliative care at the end of life: A systematic review

Karl A. Lorenz et al.

ANNALS OF INTERNAL MEDICINE (2008)

Review Anesthesiology

IMPaCCT: standards of paediatric palliative care

F. Craig et al.

SCHMERZ (2008)

Article Mathematical & Computational Biology

Purposeful selection of variables in logistic regression

Zoran Bursac et al.

SOURCE CODE FOR BIOLOGY AND MEDICINE (2008)