相关参考文献
注意：仅列出部分参考文献，下载原文获取全部文献信息。Using routine Haemophilia Joint Health Score for international comparisons of haemophilia outcome: standardization is needed
A. Nijdam et al.
HAEMOPHILIA (2016)
Center-Based Quality Initiative Targets Youth Preparedness for Medical Independence: HEMO-Milestones Tool in a Comprehensive Hemophilia Clinic Setting
Stacy E. Croteau et al.
PEDIATRIC BLOOD & CANCER (2016)
Assessments of outcome in haemophilia - a patient perspective
B. O'Mahony et al.
HAEMOPHILIA (2016)
Impact of an innovative blood factor stewardship program on drug expense and patient care
Lindsey B. Amerine et al.
AMERICAN JOURNAL OF HEALTH-SYSTEM PHARMACY (2015)
Unmet needs in the transition to adulthood: 18-to 30-year-old people with hemophilia
Doris Quon et al.
AMERICAN JOURNAL OF HEMATOLOGY (2015)
Optimal treatment strategies for hemophilia: achievements and limitations of current prophylactic regimens
Johannes Oldenburg
BLOOD (2015)
Rationale for individualizing haemophilia care
Benny Sorensen et al.
BLOOD COAGULATION & FIBRINOLYSIS (2015)
Adult severe haemophilia A patients under long-term prophylaxis with factor VIII in routine clinical practice
Maria E. Mingot-Castellano et al.
BLOOD COAGULATION & FIBRINOLYSIS (2015)
Challenges in hemophilia care in Australia and New Zealand
S. A. Brown et al.
CURRENT MEDICAL RESEARCH AND OPINION (2015)
Improving haemophilia patient care through sharing best practice
Philippe de Moerloose et al.
EUROPEAN JOURNAL OF HAEMATOLOGY (2015)
How to achieve full prophylaxis in young boys with severe haemophilia A: different regimens and their effect on early bleeding and venous access
A. Nijdam et al.
HAEMOPHILIA (2015)
Factor VIII alloantibody inhibitors: cost analysis of immune tolerance induction vs. prophylaxis and on-demand with bypass treatment
S. R. Earnshaw et al.
HAEMOPHILIA (2015)
Health economic models in hemophilia A and utility assumptions from a clinician's perspective
Michele Valente et al.
PEDIATRIC BLOOD & CANCER (2015)
Haemophilia A: Pharmacoeconomic Review of Prophylaxis Treatment versus On-Demand
Brigid Unim et al.
TheScientificWorldJOURNAL (2015)
Individualizing prophylaxis in hemophilia: a review
Pia Petrini et al.
EXPERT REVIEW OF HEMATOLOGY (2015)
Obama seeks $213m to fund precision medicine
Michael McCarthy
BMJ-BRITISH MEDICAL JOURNAL (2015)
'The patient': at the center of patient-reported outcomes
A. George Awad
EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH (2015)
Obama seeks $213m to fund precision medicine
Michael McCarthy
BMJ-BRITISH MEDICAL JOURNAL (2015)
Haemophilia A: Pharmacoeconomic Review of Prophylaxis Treatment versus On-Demand
Brigid Unim et al.
Scientific World Journal (2015)
Strategies for Postmarketing Surveillance of Drugs for Rare Diseases
A. S. Kesselheim et al.
CLINICAL PHARMACOLOGY & THERAPEUTICS (2014)
Pfizer-sponsored satellite symposium at the European Haemophilia Consortium (EHC) Congress Changing the policy landscape: haemophilia patient involvement in healthcare decision-making
Brian O'Mahony et al.
EUROPEAN JOURNAL OF HAEMATOLOGY (2014)
Methods for individualising factor VIII dosing in prophylaxis
Muhlis Cem Ar et al.
EUROPEAN JOURNAL OF HAEMATOLOGY (2014)
Patient data meta-analysis of Post-Authorization Safety Surveillance (PASS) studies of haemophilia A patients treated with rAHF-PFM
A. Iorio et al.
HAEMOPHILIA (2014)
Considerations in individualizing prophylaxis in patients with haemophilia A
L. A. Valentino
HAEMOPHILIA (2014)
The burden of bleeding in haemophilia: is one bleed too many?
A. Gringeri et al.
HAEMOPHILIA (2014)
Impact of an Individualized Prophylaxis Approach on Young Adults with Severe Hemophilia
Susana Fernandes et al.
SEMINARS IN THROMBOSIS AND HEMOSTASIS (2014)
ADHERENCE TO PROPHYLACTIC TREATMENT IN HEMOPHILIA AS MEASURED USING THE VERITAS-PRO AND ANNUAL BLEED RATE (ABR)
N. A. Duncan et al.
VALUE IN HEALTH (2014)
Prophylaxis and quality of life in patients with hemophilia A during routine treatment with ADVATE [antihemophilic factor (recombinant), plasma/albumin-free method] in Germany: a subgroup analysis of the ADVATE PASS post-approval, non-interventional study
Hartmut Pollmann et al.
ANNALS OF HEMATOLOGY (2013)
How can innovative forms of clinical research contribute to deliver affordable cancer care in an evolving health care environment?
Susen Burock et al.
EUROPEAN JOURNAL OF CANCER (2013)
Economic evaluations of prophylaxis with clotting factor for people with severe haemophilia: why do the results vary so much?
A. H. Miners
HAEMOPHILIA (2013)
Guidelines for the management of hemophilia
A. Srivastava et al.
HAEMOPHILIA (2013)
Purchasing factor concentrates in the 21st century through competitive tendering
C. R. M. Hay
HAEMOPHILIA (2013)
Treatment for life for severe haemophilia A- A cost-utility model for prophylaxis vs. on-demand treatment
A. Farrugia et al.
HAEMOPHILIA (2013)
Effect of Pay-for-Performance Incentives on Quality of Care in Small Practices With Electronic Health Records A Randomized Trial
Naomi S. Bardach et al.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2013)
Randomized, controlled, parallel-group trial of routine prophylaxis vs. on-demand treatment with sucrose-formulated recombinant factor VIII in adults with severe hemophilia A (SPINART)
M. J. Manco-Johnson et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2013)
Lifelong prophylaxis in a large cohort of adult patients with severe haemophilia: a beneficial effect on orthopaedic outcome and quality of life
Mohammed Khawaji et al.
EUROPEAN JOURNAL OF HAEMATOLOGY (2012)
Haemophilia prophylaxis: how can we justify the costs?
B. M. Feldman et al.
HAEMOPHILIA (2012)
Treatment trends for haemophilia A and haemophilia B in the United States: results from the 2010 practice patterns survey
S. Zappa et al.
HAEMOPHILIA (2012)
WFH: Closing the global gap - achieving optimal care
Mark W. Skinner
HAEMOPHILIA (2012)
Association Between Physical Activity and Risk of Bleeding in Children With Hemophilia
Carolyn R. Broderick et al.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2012)
A randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A management
L. A. Valentino et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2012)
Magnetic resonance imaging and joint outcomes in boys with severe hemophilia A treated with tailored primary prophylaxis in Canada
J. Kraft et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2012)
The Long-Term Effect of Premier Pay for Performance on Patient Outcomes
Ashish K. Jha et al.
NEW ENGLAND JOURNAL OF MEDICINE (2012)
Effect of Acute Bleeding on Daily Quality of Life Assessments in Patients with Congenital Hemophilia with Inhibitors and Their Families: Observations from the Dosing Observational Study in Hemophilia
Ellis J. Neufeld et al.
VALUE IN HEALTH (2012)
A modeling approach to evaluate long-term outcome of prophylactic and on demand treatment strategies for severe hemophilia A
Kathelijn Fischer et al.
HAEMATOLOGICA-THE HEMATOLOGY JOURNAL (2011)
Implications of coagulation factor VIII and IX pharmacokinetics in the prophylactic treatment of haemophilia
P. W. Collins et al.
HAEMOPHILIA (2011)
The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study
R. Klamroth et al.
HAEMOPHILIA (2011)
Magnetic resonance imaging in teenagers and young adults with limited haemophilic arthropathy: baseline results from a prospective study
I. E. M. Den Uijl et al.
HAEMOPHILIA (2011)
A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study)
A. Gringeri et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2011)
Observational Methods in Comparative Effectiveness Research
John Concato et al.
AMERICAN JOURNAL OF MEDICINE (2010)
Health economics in haemophilia: a review from the clinician's perspective
M. A. Escobar
HAEMOPHILIA (2010)
Comparative pharmacokinetics of plasma- and albumin-free recombinant factor VIII in children and adults: the influence of blood sampling schedule on observed age-related differences and implications for dose tailoring
S. Bjorkman et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2010)
Blood-induced joint disease: the pathophysiology of hemophilic arthropathy
L. A. Valentino
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2010)
Factor VIII requirement to maintain a target plasma level in the prophylactic treatment of severe hemophilia A: influences of variance in pharmacokinetics and treatment regimens
P. W. Collins et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2010)
Haemophilia care in adolescents - compliance and lifestyle issues
P. Petrini et al.
HAEMOPHILIA (2009)
Break-through bleeding in relation to predicted factor VIII levels in patients receiving prophylactic treatment for severe hemophilia A
P. W. Collins et al.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2009)
Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data
M. Richards et al.
HAEMOPHILIA (2007)
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
Marilyn J. Manco-Johnson et al.
NEW ENGLAND JOURNAL OF MEDICINE (2007)
Mortality rates, life expectancy, and causes of death in people with hemophilia A or B in the United Kingdom who were not infected with HIV
Sarah C. Darby et al.
BLOOD (2007)
Practice patterns in haemophilia A therapy - global progress towards optimal care
S Geraghty et al.
HAEMOPHILIA (2006)
Recommendations for postmarketing surveillance studies in haemophilia and other bleeding disorders
R Lassila et al.
HAEMOPHILIA (2005)
A 6-year follow-up of dosing, coagulation factor levels and bleedings in relation to joint status in the prophylactic treatment of haemophilia
J Ahnström et al.
HAEMOPHILIA (2004)
Prophylactic treatment for severe haemophilia: comparison of an intermediate-dose to a high-dose regimen
K Fischer et al.
HAEMOPHILIA (2002)
Modified magnetic resonance imaging score compared with orthopaedic and radiological scores for the evaluation of haemophilic arthropathy
MB Funk et al.
HAEMOPHILIA (2002)
分享论文
