期刊
TRENDS IN CARDIOVASCULAR MEDICINE
卷 26, 期 7, 页码 647-653出版社
ELSEVIER SCIENCE LONDON
DOI: 10.1016/j.tcm.2016.04.010
关键词
Psychological wellbeing; Genetic testing; Hypertrophic cardiomyopathy; Quality of life
资金
- National Health and Medical Research Council (NHMRC) [APP1049238]
- NHMRC Practitioner Fellowship [APP1059156]
- National Heart Foundation of Australia [100833]
Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with lifelong cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting. (C) 2016 Elsevier Inc. All rights reserved.
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