☆ 4.4 Review

Outcome Measures for the Evaluation of Treatment Response in Hidradenitis Suppurativa for Clinical Practice A HiSTORIC Consensus Statement

JAMA DERMATOLOGY (2023)

相关参考文献

注意：仅列出部分参考文献，下载原文获取全部文献信息。

Article Dermatology

Low Rates of Psychosocial Screening and Lifestyle Counseling in Hidradenitis Suppurativa Patients in the USA

Terri Shih et al.

Summary: Although HS is associated with psychosocial comorbidities and modifiable comorbidities, rates of psychosocial screening and lifestyle counseling in the USA have not been characterized. This study used data from NAMCS to analyze trends in rates of screening and counseling for HS patients. The results showed low rates of screening and counseling overall, with disparities based on race and insurance status.

SKIN APPENDAGE DISORDERS (2023)

添加到收藏夹

Review Dermatology

Demographic Gaps and Requirements for Participation: A Systematic Review of Clinical Trial Designs in Hidradenitis Suppurativa

JaBreia Fanita James et al.

Summary: This study systematically reviewed inclusion and exclusion criteria as well as participant demographics in HS clinical trials. The findings revealed low representation of key patient groups, such as Black individuals, and substantial hardships imposed by trial participation.

DERMATOLOGY (2023)

添加到收藏夹

Article Dermatology

Validation of the Hidradenitis Suppurativa Investigator Global Assessment A Novel Hidradenitis Suppurativa-Specific Investigator Global Assessment for Use in Interventional Trials

Amit Garg et al.

Summary: This study evaluated the psychometric properties of the HS-IGA score and found that it has good validity and reliability. The HS-IGA score may be considered as an endpoint in clinical trials for HS.

JAMA DERMATOLOGY (2023)

添加到收藏夹

Article Dermatology

Pain experiences among those living with hidradenitis suppurativa: a qualitative study

Lauren A. Orenstein et al.

Summary: This qualitative study interviewed 21 adults with HS-related pain to understand their pain experiences. Pain affected various aspects of their lives and many participants managed their pain without medical guidance. Asking HS patients about their pain can help identify unmet needs, improve pain management, and enhance quality of life.

BRITISH JOURNAL OF DERMATOLOGY (2023)

添加到收藏夹

Letter Dermatology

Initial validation of the Hidradenitis Suppurativa Quality of Life tool in a clinical trial setting

Leandro L. Santos et al.

BRITISH JOURNAL OF DERMATOLOGY (2023)

添加到收藏夹

Article Dermatology

Patients with Hidradenitis Suppurativa Suffer from Low Health-Related Quality of Life as Measured by the Generic 15D Instrument

Mirkka J. Hirvonen et al.

Summary: The study found that HS patients have low HRQoL scores, and even mild HS has a significant impact on HRQoL. There was no correlation between HS severity measures and HRQoL scores, indicating that HS is a highly impactful disease. These findings emphasize the need for comprehensive care for patients with HS.

SKIN APPENDAGE DISORDERS (2022)

添加到收藏夹

Article Dermatology

Factors associated with treatment satisfaction in patients with hidradenitis suppurativa: results from the Global VOICE project

Bria Midgette et al.

Summary: This study found that patients with hidradenitis suppurativa (HS) who were primarily treated by a dermatologist and received biologic medication had higher treatment satisfaction. Factors such as smoking, depression, comorbid conditions, and flare frequency were associated with lower treatment satisfaction.

BRITISH JOURNAL OF DERMATOLOGY (2022)

添加到收藏夹

Review Dermatology

Measuring Atopic Eczema Control and Itch Intensity in Clinical Practice A Consensus Statement From the Harmonising Outcome Measures for Eczema in Clinical Practice (HOME-CP) Initiative

Yael A. Leshem et al.

Summary: The Harmonising Outcome Measures for Eczema (HOME) Clinical Practice initiative is developing a list of validated instruments for measuring eczema control and itch intensity in clinical care.

JAMA DERMATOLOGY (2022)

添加到收藏夹

Article

Evaluating the hidradenitis odor and drainage scale (HODS): A new validated potential instrument to assess odor and drainage in hidradenitis suppurativa—A cross-sectional study

Afsaneh Alavi et al.

JAAD International (2022)

添加到收藏夹

Article Health Care Sciences & Services

Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study

Damon Willems et al.

Summary: HS is an inflammatory skin disease that significantly impacts patients' quality of life. This research conducted interviews with both patients and healthcare professionals to understand unmet needs and treatment considerations. Both patients and HCPs identified lacking quality-of-life improvement, low treatment effectiveness, inadequate pain control, low disease awareness, and delayed diagnosis as common unmet needs. Patients emphasized pain management and access to specialists, while both patients and HCPs prioritized treatment attributes related to effectiveness.

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH (2022)

添加到收藏夹

Article Biology

Quality-of-Life Impairment among Patients with Hidradenitis Suppurativa: A Cross-Sectional Study of 1795 Patients

Piotr K. Krajewski et al.

Summary: This study provides robust data on the significant impact of HS on patients' QoL in a cohort of 1795 German patients, showing that women tend to experience higher impairment, especially when the neck is involved. Understanding QoL impairment in such patients is crucial for proper management of this disease.

LIFE-BASEL (2021)

添加到收藏夹

Letter Dermatology

Expert Knowledge, Attitudes, and Practices in Management of Hidradenitis Suppurativa Pain

Mark J. Jedrzejczak et al.

Summary: This cross-sectional survey examines the knowledge, attitudes, and practices of international experts in pain management for patients with hidradenitis suppurativa.

JAMA DERMATOLOGY (2021)

添加到收藏夹

Article Allergy

Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Piotr Krajewski et al.

Summary: The study aimed to translate and validate the Polish version of a newly created HS-specific questionnaire - Hidradenitis Suppurativa Quality of Life (HiSQOL). The Polish version showed very good internal consistency and excellent reproducibility, indicating its potential as a tool to assess health-related quality of life in HS patients.

POSTEPY DERMATOLOGII I ALERGOLOGII (2021)

添加到收藏夹

Article Dermatology

Evaluating patients' unmet needs in hidradenitis suppurativa: Results from the Global Survey Of Impact and Healthcare Needs (VOICE) Project

Amit Garg et al.

JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY (2020)

添加到收藏夹

Article Dermatology

Could Residents Adequately Assess the Severity of Hidradenitis Suppurativa? Interrater and Intrarater Reliability Assessment of Major Scoring Systems

Katarzyna Wlodarek et al.

DERMATOLOGY (2020)

添加到收藏夹

Article Rheumatology

Is treat-to-target really working in rheumatoid arthritis? a longitudinal analysis of a cohort of patients treated in daily practice (RA BIODAM)

Sofia Ramiro et al.

ANNALS OF THE RHEUMATIC DISEASES (2020)

添加到收藏夹

Review Rheumatology

Treat-to-target in PsA: methods and necessity

Emma Dures et al.

RMD OPEN (2020)

添加到收藏夹

Article Dermatology

North American clinical management guidelines for hidradenitis suppurativa: A publication from the United States and Canadian Hidradenitis Suppurativa Foundations Part II: Topical, intralesional, and systemic medical management

Ali Alikhan et al.

JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY (2019)

添加到收藏夹

Article Dermatology

Development and initial psychometric evaluation of patient-reported outcome questionnaires to evaluate the symptoms and impact of hidradenitis suppurativa

Alexa B. Kimball et al.

JOURNAL OF DERMATOLOGICAL TREATMENT (2018)

添加到收藏夹

Article Dermatology

A core domain set for hidradenitis suppurativa trial outcomes: an international Delphi process

L. Thorlacius et al.

BRITISH JOURNAL OF DERMATOLOGY (2018)

添加到收藏夹

Article Rheumatology

Long-term disease and patient-reported outcomes of a continuous treat-to-target approach in patients with early rheumatoid arthritis in daily clinical practice

G. A. Versteeg et al.

CLINICAL RHEUMATOLOGY (2018)

添加到收藏夹

Article Anesthesiology

Core outcome measurement instruments for clinical trials in nonspecific low back pain

Alessandro Chiarotto et al.

PAIN (2018)

添加到收藏夹

Article Dermatology

A Novel Severity Assessment Scoring System for Hidradenitis Suppurativa

Schapoor Hessam et al.

JAMA DERMATOLOGY (2018)

添加到收藏夹

Article Dermatology

Untitled

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY (2018)

添加到收藏夹

Review Health Care Sciences & Services

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Saskia Juenger et al.

PALLIATIVE MEDICINE (2017)

添加到收藏夹

Review Rheumatology

Treating rheumatoid arthritis to target: 2014 update of the recommendations of an international task force

Josef S. Smolen et al.

ANNALS OF THE RHEUMATIC DISEASES (2016)

添加到收藏夹

Article Health Care Sciences & Services

MH Explanation and elaboration of the SQUIRE (Standards for Quality Improvement Reporting Excellence) Guidelines, V.2.0: examples of SQUIRE elements in the healthcare improvement literature

Daisy Goodman et al.

BMJ QUALITY & SAFETY (2016)

添加到收藏夹

Article Dermatology

Pain management in patients with hidradenitis suppurativa

Barbara Horvath et al.

JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY (2015)

添加到收藏夹

Article Medicine, General & Internal

Effect of tight control of inflammation in early psoriatic arthritis (TICOPA): a UK multicentre, open-label, randomised controlled trial

Laura C. Coates et al.

LANCET (2015)

添加到收藏夹

Article Dermatology

Assessing the validity, responsiveness and meaningfulness of the Hidradenitis Suppurativa Clinical Response (HiSCR) as the clinical endpoint for hidradenitis suppurativa treatment

A. B. Kimball et al.

BRITISH JOURNAL OF DERMATOLOGY (2014)

添加到收藏夹

Article Medicine, General & Internal

Adalimumab for the Treatment of Moderate to Severe Hidradenitis Suppurativa A Parallel Randomized Trial

Alexa B. Kimball et al.

ANNALS OF INTERNAL MEDICINE (2012)

添加到收藏夹

Editorial Material Rheumatology

'Treat to target': moving targets from hypertension, hyperlipidaemia and diabetes to rheumatoid arthritis

Dan Atar et al.

ANNALS OF THE RHEUMATIC DISEASES (2010)

添加到收藏夹

Article Dermatology

Infliximab therapy for patients with moderate to severe hidradenitis, suppurativa: A randomized, double-blind, placebo-controlled crossover trial

Annika Grant et al.

JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY (2010)

添加到收藏夹

Review Health Care Sciences & Services

Comparative responsiveness of generic and specific quality-of-life instruments

S Wiebe et al.

JOURNAL OF CLINICAL EPIDEMIOLOGY (2003)

添加到收藏夹

© Peeref 2019-2024. All rights reserved.