Recruitment and Engagement of Indigenous Peoples in Brain-Related Health Research

ObjectivesTo characterize recruitment approaches to research on the brain and mind that involves Indigenous peoples.MethodsWe conducted a secondary analysis of a Harding et al. (2021) scoping review. Reviewers screened studies (n = 66) for sampling methods, recruitment and engagement, positionality statements, and details on ethics approvals.SynthesisWe identified twenty-nine (29) English-language articles relevant to the analysis. Of these, 52% (n = 15/29) reported a mix of sampling methods; 45% (n = 13/29) contained statements or information about author positionalities. While, overall, 24% (n = 7/29) of the studies were missing information about ethics protocols, we observe an improvement over time in the reporting of approvals and use of community-engaged participant recruitment methods. Current brain research studies demonstrate ways of collaborating with Indigenous communities that meet existing ethics guidelines. To be wholly responsive to the needs of Indigenous peoples, however, researchers may need to exceed existing ethical benchmarks.. Positionality statements successfully detailed the relationships of the research teams with the communities with which they work, and contextualized recruitment methods.ConclusionImproved quality and meaningfulness of brain research with Indigenous peoples and trust in the research process and public health will be enhanced when remaining gaps in protecting and reporting of participant recruitment methods are closed.

Automated summary

This study conducted a secondary analysis of brain and mind research involving Indigenous peoples and identified improvements and advocacy in recruitment methods. The disclosure of the research teams' relationships with the communities and contextualization of recruitment methods are crucial for building trust and enhancing research quality.