4.5 Article

The chameleon among diseases - an explorative view of sarcoidosis and identification of the consequences for affected patients and relatives using qualitative interviews

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Review Public, Environmental & Occupational Health

Qualitative Research in Healthcare: Necessity and Characteristics

Jeehee Pyo et al.

Summary: This review aims to provide a proper understanding of qualitative research by examining the characteristics of quantitative and qualitative research. It identifies cases where qualitative research is applicable and outlines the order in which qualitative research should be conducted. The review emphasizes the importance of using qualitative research in healthcare and hopes to improve researchers' understanding of qualitative research.

JOURNAL OF PREVENTIVE MEDICINE & PUBLIC HEALTH (2023)

Article Multidisciplinary Sciences

Leveraging internet search data to assess prevalence, interest, and unmet needs of sarcoidosis in Germany

Charlotte Hilker et al.

Summary: This study utilized internet search data to investigate sarcoidosis, revealing a high search volume and indicating a lack of information about the disease. The overall search volume showed an increasing trend, while seasonal fluctuations suggested potential environmental and climatic factors influencing sarcoidosis.

SCIENTIFIC REPORTS (2021)

Review Medicine, Research & Experimental

How to Tackle the Diagnosis and Treatment in the Diverse Scenarios of Extrapulmonary Sarcoidosis

Dominique Valeyre et al.

Summary: Extrapulmonary sarcoidosis can affect various organs and presents with diverse symptoms, requiring individualized treatment considering specific organ functions.

ADVANCES IN THERAPY (2021)

Article Respiratory System

ERS clinical practice guidelines on treatment of sarcoidosis

Robert P. Baughman et al.

Summary: Treatment of sarcoidosis aims to reduce morbidity and mortality risk, and improve quality of life. Various treatments are available, with decisions based on organ involvement, risk assessment, and impact on quality of life.

EUROPEAN RESPIRATORY JOURNAL (2021)

Review Medicine, General & Internal

Challenges of Sarcoidosis and Its Management

Marjolein Drent et al.

Summary: Sarcoidosis is a lung disease characterized by noncaseating granulomas of unknown cause, which can also affect the heart and nervous system. Tissue biopsy is required for definitive diagnosis, and glucocorticoids are recommended as initial treatment when necessary, but not for long-term care.

NEW ENGLAND JOURNAL OF MEDICINE (2021)

Editorial Material Medicine, General & Internal

The Chameleon Behavior of Sarcoidosis

Claudio Tana et al.

JOURNAL OF CLINICAL MEDICINE (2021)

Review Medicine, General & Internal

Health-Related Quality of Life (HRQoL) in Sarcoidosis: Diagnosis, Management, and Health Outcomes

Lesley Ann Saketkoo et al.

Summary: HRQoL, a multi-dimensional concept reflecting how a health condition interferes with important life areas, is linked to decreased physical function, pain, loss of income, and personal strain in conditions like sarcoidosis. Interventions targeting HRQoL can lead to increased survival rates, making it a crucial aspect of patient care.

DIAGNOSTICS (2021)

Review Medicine, General & Internal

Comprehensive Care for Patients with Sarcoidosis

Catharina C. Moor et al.

JOURNAL OF CLINICAL MEDICINE (2020)

Article Critical Care Medicine

Diagnosis and Detection of Sarcoidosis An Official American Thoracic Society Clinical Practice Guideline

Elliott D. Crouser et al.

AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE (2020)

Review Critical Care Medicine

Health-Related Quality of Life in Sarcoidosis

Ogugua Ndili Obi

SEMINARS IN RESPIRATORY AND CRITICAL CARE MEDICINE (2020)

Review Respiratory System

Diagnosis issues in sarcoidosis

F. Jeny et al.

RESPIRATORY MEDICINE AND RESEARCH (2020)

Article Public, Environmental & Occupational Health

Everything Is Perfect, and We Have No Problems: Detecting and Limiting Social Desirability Bias in Qualitative Research

Nicole Bergen et al.

QUALITATIVE HEALTH RESEARCH (2020)

Review Clinical Neurology

Neurosarcoidosis: clinical manifestations, investigation and treatment

Desmond P. Kidd

PRACTICAL NEUROLOGY (2020)

Article Respiratory System

The Burden of Sarcoidosis Symptoms from a Patient Perspective

M. Voortman et al.

Article Medicine, General & Internal

Sarcoidosis

Johan Grunewald et al.

NATURE REVIEWS DISEASE PRIMERS (2019)

Article Public, Environmental & Occupational Health

Self-help support for chronic illness-societal challenges and current approaches

Jutta Hundertmark-Mayser et al.

BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ (2019)

Article Public, Environmental & Occupational Health

Patient involvement: challenges for organized self-help and joint self-government

Martin Danner et al.

BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ (2019)

Article Health Care Sciences & Services

What Do Germans Want to Know About Skin Cancer? A Nationwide Google Search Analysis From 2013 to 2017

Stefanie Seidl et al.

JOURNAL OF MEDICAL INTERNET RESEARCH (2018)

Article Rheumatology

Qualitative Methods to Advance Care, Diagnosis, and Therapy in Rheumatic Diseases

Lesley Ann Saketkoo et al.

RHEUMATIC DISEASE CLINICS OF NORTH AMERICA (2018)

Review Pharmacology & Pharmacy

Treatment of sarcoidosis: grading the evidence

W. Ennis James et al.

EXPERT REVIEW OF CLINICAL PHARMACOLOGY (2018)

Article Cardiac & Cardiovascular Systems

Work ability before and after sarcoidosis diagnosis in Sweden

Elizabeth V. Arkema et al.

RESPIRATORY MEDICINE (2018)

Letter Respiratory System

Sarcoidosis: patient treatment priorities

Robert P. Baughman et al.

ERJ OPEN RESEARCH (2018)

Article Respiratory System

Disease Burden and Variability in Sarcoidosis

Alicia K. Gerke et al.

ANNALS OF THE AMERICAN THORACIC SOCIETY (2017)

Article Respiratory System

Sarcoidosis incidence and prevalence: a nationwide register-based assessment in Sweden

Elizabeth V. Arkema et al.

EUROPEAN RESPIRATORY JOURNAL (2016)

Article Respiratory System

Quality of Life Assessment in Sarcoidosis

Marc A. Judson

CLINICS IN CHEST MEDICINE (2015)

Article Respiratory System

Consequences of Sarcoidosis

Marjolein Drent et al.

CLINICS IN CHEST MEDICINE (2015)

Article Health Care Sciences & Services

Access to Care and Use of the Internet to Search for Health Information: Results From the US National Health Interview Survey

Daniel J. Amante et al.

JOURNAL OF MEDICAL INTERNET RESEARCH (2015)

Article Nursing

Living as a family in the midst of chronic illness

Liselott Arestedt et al.

SCANDINAVIAN JOURNAL OF CARING SCIENCES (2014)

Review Respiratory System

Reduced muscle strength, exercise intolerance and disabling symptoms in sarcoidosis

Rik G. J. Marcellis et al.

CURRENT OPINION IN PULMONARY MEDICINE (2013)

Article Respiratory System

Delayed diagnosis of sarcoidosis is common in Brazil

Mauri Monteiro Rodrigues et al.

JORNAL BRASILEIRO DE PNEUMOLOGIA (2013)

Article Pediatrics

After Dr Google: Peer-to-Peer Health Care

Susannah Fox

PEDIATRICS (2013)

Article Respiratory System

Sarcoidosis-associated fatigue

Marjolein Drent et al.

EUROPEAN RESPIRATORY JOURNAL (2012)

Article Psychiatry

Post-inflammatory fatigue in sarcoidosis: Personality profiles, psychological symptoms and stress hormones

Ingrid H. E. Korenromp et al.

JOURNAL OF PSYCHOSOMATIC RESEARCH (2012)

Article Respiratory System

The diagnosis of sarcoidosis

Marc A. Judson

CLINICS IN CHEST MEDICINE (2008)

Article Health Care Sciences & Services

Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups

Allison Tong et al.

INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE (2007)

Article Medicine, General & Internal

The management of sarcoidosis by the primary care physician

Marc A. Judson

AMERICAN JOURNAL OF MEDICINE (2007)

Article Critical Care Medicine

Fatigue is associated with quality of life in sarcoidosis patients

Helen J. Michielsen et al.

Article Public, Environmental & Occupational Health

Gender differences in the utilization of health-care services among the older adult population of Spain

Aurea Redondo-Sendino et al.

BMC PUBLIC HEALTH (2006)

Article Geriatrics & Gerontology

Managing chronic illness implications for the health care system

D. Schaeffer

ZEITSCHRIFT FUR GERONTOLOGIE UND GERIATRIE (2006)