期刊
INTENSIVE CARE MEDICINE
卷 -, 期 -, 页码 -出版社
SPRINGER
DOI: 10.1007/s00134-023-07215-4
关键词
Families; Family-centered care; Post-traumatic stress disorder; Information; Intensive care; Communication; Online
Family members of critically ill patients often experience significant PTSD symptoms, and online information about intensive care does not lead to a reduction in these symptoms.
Purpose: Intensive care unit (ICU) hospitalization is challenging for the family members of the patients. Most family members report some level of anxiety and depression, sometimes even resulting in post-traumatic stress disorder (PTSD). An association has been reported between lack of information and PTSD. This study had three aims: to quantify the psychological burden of family members of critically ill patients, to explore whether a website with specific information could reduce PTSD symptoms, and to ascertain whether a website with information about intensive care would be used. Method: A multicenter double-blind, randomized, placebo-controlled trial was carried out in Austria and Switzerland. Results: In total, 89 members of families of critically ill patients (mean age 47.3 +/- 12.9 years, female n = 59, 66.3%) were included in the study. 46 relatives were allocated to the intervention website and 43 to the control website. Baseline Impact of Event Scale (IES) score was 27.5 +/- 12.7. Overall, 50% showed clinically relevant PTSD symptoms at baseline. Mean IES score for the primary endpoint (similar to 30 days after inclusion, T1) was 24 +/- 15.8 (intervention 23.9 +/- 17.9 vs. control 24.1 +/- 13.5, p = 0.892). Hospital Anxiety and Depression Scale (HADS - Deutsch (D)) score at T1 was 12.2 +/- 6.1 (min. 3, max. 31) and did not differ between groups. Use of the website differed between the groups (intervention min. 1, max. 14 vs. min. 1, max. 3; total 1386 clicks on the website, intervention 1021 vs. control 365). Recruitment was prematurely stopped in February 2020 due to coronavirus disease 2019 (COVID-19). Conclusion: Family members of critically ill patients often have significant PTSD symptoms and online information on critical illness did not result in reduced PTSD symptoms.
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