4.4 Article

Translation and validation of the Korean version of the QUAlity of Life Assessment in Spina bifida for Teenagers (QUALAS-T-K)

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DISABILITY AND REHABILITATION
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TAYLOR & FRANCIS LTD
DOI: 10.1080/09638288.2023.2241820

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Quality of life; questionnaires; spinal dysraphism; adolescent; reliability; validity; >

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The purpose of this study was to translate and validate the QUALAS-T into Korean to evaluate health-related quality of life in adolescents with spina bifida. The QUALAS-T-K demonstrated excellent internal consistency, stability, and correlations with the KIDSCREEN-27. It is considered a convenient and reliable tool for assessing the HRQOL of adolescents with spina bifida.
PurposeThe Quality of Life Assessment in Spina bifida for Teenagers (QUALAS-T) is a tool used to evaluate health-related quality of life (HRQOL) in adolescents with spina bifida (SB). The purpose of this study was to translate the QUALAS-T into Korean and validate its Korean version (QUALAS-T-K).MethodsTranslation and validation processes were carried out in accordance with a specified protocol, including forward and back translation, a content validity study, and a main study. The tool's reliability was evaluated based on its internal consistency and stability. Factor analysis was conducted, and convergent validity was confirmed using the KIDSCREEN-27.ResultsOf the 59 participants, 35 had lipomyelomeningoceles. Confirmatory factor analysis confirmed that QUALAS-T-K had the same structure as QUALAS-T. The QUALAS-T-K showed excellent internal consistency (& alpha;: 0.872-0.893, & omega;: 0.875-0.885), test-retest reliability (ICC:0.84-0.92), and weak to strong correlations with the KIDSCREEN-27.ConclusionsThe QUALAS-T-K, developed by reflecting on the characteristics of SB and considering the applicability of Korean cultural characteristics and clinical practice, is a convenient and reliable tool with excellent internal consistency and stability. This could be a useful tool in clinical and research settings for HRQOL evaluation of adolescents with SB.

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