☆ 4.7 Article

Where are caregivers in the clinical trial? Evaluation of caregiver responsibilities in Alzheimer's disease and related dementias clinical trials

ALZHEIMERS & DEMENTIA (2023)

相关参考文献

注意：仅列出部分参考文献，下载原文获取全部文献信息。

Review Health Care Sciences & Services

Conceptual Framework for Integrating Family Caregivers Into the Health Care Team: A Scoping Review

Minakshi Raj et al.

Summary: More than 80% of family care partners are responsible for coordinating care, but their inclusion in healthcare lacks recognition and standardization. Existing studies on care partner inclusion are limited and lack standardized definitions and measurements. Further efforts are needed to build healthcare teams inclusive of care partners, potentially requiring incentives for healthcare organizations and providers to practice inclusive team-building.

MEDICAL CARE RESEARCH AND REVIEW (2023)

添加到收藏夹

Editorial Material Clinical Neurology

What Should the Goals Be for Diverse Recruitment in Alzheimer Clinical Trials?

Joshua D. Grill et al.

JAMA NEUROLOGY (2022)

添加到收藏夹

Article Nursing

Understanding and Optimizing Family Caregiver Participation in Dyadic Research

Elliane Irani et al.

Summary: This study examined the relationship between recruitment conditions and patients' appraisal of dyadic engagement in heart failure management and caregiver participation. The results indicated that caregiver participation was influenced by recruitment strategy and the patients' primary responsibility for management. The findings highlight the importance of considering recruitment strategy and dyadic care type in the recruitment process.

NURSING RESEARCH (2022)

添加到收藏夹

Article Clinical Neurology

Increasing engagement of Hispanics/Latinos in clinical trials on Alzheimer's disease and related dementias

David X. Marquez et al.

Summary: This article explores the barriers and facilitators to the participation of Latinos in clinical trials for Alzheimer's disease and related dementias (ADRD) and provides strategies to increase representation. The study found that bilingual information and education on ADRD and clinical trials need to be better disseminated, working with trusted local organizations can increase participation, and demonstrating altruism and informing participants of public health reasons can also increase Latino participation.

ALZHEIMERS & DEMENTIA-TRANSLATIONAL RESEARCH & CLINICAL INTERVENTIONS (2022)

添加到收藏夹

Editorial Material Public, Environmental & Occupational Health

Caregiving Across Cultures: Priority Areas for Research, Policy, and Practice to Support Family Caregivers of Older Asian Immigrants

Minakshi Raj et al.

AMERICAN JOURNAL OF PUBLIC HEALTH (2021)

添加到收藏夹

Article Health Care Sciences & Services

ClinicalTrials.gov as a Source of Information About Expanded Access Programs: Cohort Study

Jan Borysowski et al.

Summary: The study evaluated the completeness of information in the records of 228 expanded access programs registered with ClinicalTrials.gov and found missing data in many records, including detailed study descriptions, facility information, central contact person, and eligibility criteria. Some missing information was related to the registration year. Additionally, only 42.9% of expanded access studies performed in the United States from 2014 to 2019 were registered with ClinicalTrials.gov. The study suggested actions to fully exploit the register as a source of information about expanded access.

JOURNAL OF MEDICAL INTERNET RESEARCH (2021)

添加到收藏夹

Review Geriatrics & Gerontology

Strategies to engage people with dementia and their informal caregivers in dyadic intervention: A scoping review

Daphne Sze Ki Cheung et al.

Summary: This scoping review study identified various strategies for engaging dyads in interventions for people with dementia and their informal caregivers, reported the perceptions of dyads on these strategies, and documented the attrition rates of the included studies. Engagement strategies included ensuring quality interventionists, providing supporting materials, establishing peer support, tailoring content, and conducting interventions in convenient and comfortable settings with short and succinct programs. Dyads' subjective experiences of these strategies were reported, with attrition rates ranging from 0% to 59.1%.

GERIATRIC NURSING (2021)

添加到收藏夹

Review Neurosciences

Facilitators, Challenges, and Messaging Strategies for Hispanic/Latino Populations Participating in Alzheimer's Disease and Related Dementias Clinical Research: A Literature Review

Holly A. Massett et al.

Summary: Hispanic and Latino populations are disproportionately affected by Alzheimer's disease and related dementias, yet they are underrepresented in clinical research. This lack of representation hinders the generalizability of study findings and treatments across diverse populations. Systemic challenges, lack of culturally relevant resources, and eligibility criteria that exclude Hispanics/Latinos are key barriers to their participation, but tailored outreach efforts and messaging strategies can improve engagement and interest.

JOURNAL OF ALZHEIMERS DISEASE (2021)

添加到收藏夹

Editorial Material Public, Environmental & Occupational Health

TOGETHER WE MAKE THE DIFFERENCE: NATIONAL STRATEGY FOR RECRUITMENT AND PARTICIPATION IN ALZHEIMER'S AND RELATED DEMENTIAS CLINICAL RESEARCH Foreword

Cerise L. Elliott

ETHNICITY & DISEASE (2020)

添加到收藏夹

Article Gerontology

Integrating Family Caregivers of People With Alzheimer's Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices

Joan M. Griffin et al.

JOURNAL OF APPLIED GERONTOLOGY (2020)

添加到收藏夹

Article Clinical Neurology

A dyadic perspective on assessment in Alzheimer's dementia: Supporting both care partners across the disease continuum

Silvia Orsulic-Jeras et al.

ALZHEIMERS & DEMENTIA-TRANSLATIONAL RESEARCH & CLINICAL INTERVENTIONS (2020)

添加到收藏夹

Review Health Care Sciences & Services

Patient and caregiver experience with delayed discharge from a hospital setting: A scoping review

Amanda C. Everall et al.

HEALTH EXPECTATIONS (2019)

添加到收藏夹

Article Geriatrics & Gerontology

A Preliminary Study of Clinical Trial Enrollment Decisions Among People With Mild Cognitive Impairment and Their Study Partners

Chelsea G. Cox et al.

AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY (2019)

添加到收藏夹

Article Medicine, General & Internal

A Framework for Ethical Payment to Research Participants

Luke Gelinas et al.

NEW ENGLAND JOURNAL OF MEDICINE (2018)

添加到收藏夹

Editorial Material Clinical Neurology

Study partners: essential collaborators in discovering treatments for Alzheimer's disease

Emily A. Largent et al.

ALZHEIMERS RESEARCH & THERAPY (2018)

添加到收藏夹

Article Nursing

Paying patient and caregiver research participants: putting theory into practice

Meg Polacsek et al.

JOURNAL OF ADVANCED NURSING (2017)

添加到收藏夹

Editorial Material Clinical Neurology

The crisis in recruitment for clinical trials in Alzheimer's and dementia: An action plan for solutions

Keith N. Fargo et al.

ALZHEIMERS & DEMENTIA (2016)

添加到收藏夹

Review Clinical Neurology

Facilitating Alzheimer Disease Research Recruitment

Joshua D. Grill et al.

ALZHEIMER DISEASE & ASSOCIATED DISORDERS (2014)

添加到收藏夹

Article Psychology, Clinical

Researchers' perspectives on the role of study partners in dementia research

Betty S. Black et al.

INTERNATIONAL PSYCHOGERIATRICS (2014)

添加到收藏夹

Review Medicine, General & Internal

Caregiver Burden A Clinical Review

Ronald D. Adelman et al.

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2014)

添加到收藏夹

Article Family Studies

Racial and Ethnic Differences in Extended Family, Friendship, Fictive Kin, and Congregational Informal Support Networks

Robert Joseph Taylor et al.

FAMILY RELATIONS (2013)

添加到收藏夹

Review Geriatrics & Gerontology

The Influence of Ethnicity and Culture on Dementia Caregiving: A Review of Empirical Studies on Chinese Americans

Fei Sun et al.

AMERICAN JOURNAL OF ALZHEIMERS DISEASE AND OTHER DEMENTIAS (2012)

添加到收藏夹

Article Nursing

Predictors of caregiver burden in caregivers of individuals with dementia

Heejung Kim et al.

JOURNAL OF ADVANCED NURSING (2012)

添加到收藏夹

Article Geriatrics & Gerontology

Going It Together: Persistence of Older Adults' Accompaniment to Physician Visits by a Family Companion

Jennifer L. Wolff et al.

JOURNAL OF THE AMERICAN GERIATRICS SOCIETY (2012)

添加到收藏夹

Article Clinical Neurology

Deliberative assessment of surrogate consent in dementia research

Scott Y. H. Kim et al.

ALZHEIMERS & DEMENTIA (2010)

添加到收藏夹

Article Geriatrics & Gerontology

Burden in Caregivers of Older Adults with Advanced Illness

Katherine Garlo et al.

JOURNAL OF THE AMERICAN GERIATRICS SOCIETY (2010)

添加到收藏夹

Review Clinical Neurology

Addressing the challenges to successful recruitment and retention in Alzheimer's disease clinical trials

Joshua D. Grill et al.

ALZHEIMERS RESEARCH & THERAPY (2010)

添加到收藏夹

Article Clinical Neurology

How redesigning AD clinical trials might increase study partners' willingness to participate

Jason Karlawish et al.

NEUROLOGY (2008)

添加到收藏夹

Article Gerontology

Recruitment and retention of Latino dementia family Caregivers in intervention research:: Issues to face, lessons to learn

D Gallagher-Thompson et al.

GERONTOLOGIST (2003)

添加到收藏夹

Article Clinical Neurology

How do AD patients and their caregivers decide whether to enroll in a clinical trial?

JHT Karlawish et al.

NEUROLOGY (2001)

添加到收藏夹

© Peeref 2019-2024. All rights reserved.