3.8 Article

Neck Collar Assessment for People Living With Motor Neuron Disease: Are Current Outcome Measures Suitable?

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JMIR PUBLICATIONS, INC
DOI: 10.2196/43274

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motor neuron disease; outcome measures; neck collar; bespoke orthoses; 3D scanning

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Most people with MND reject neck collars due to their restrictiveness, which exacerbates problems with daily activities. Current standardized outcome measures for neck collars are summarized to assess their suitability for a bespoke collar designed for people with MND.
A majority of people living with motor neuron disease (MND) experience weakness of the neck and as a result, experience head drop. This exacerbates problems with everyday activities (eating, talking, breathing, etc). Neck collars are often used to support head drop; however, these are typically designed for prehospitalization settings to manage and brace the cervical region of the spine. As a result, it has been recorded that people living with MND often reject these collars for a variety of reasons but most notably because they are too restricting. The current standardized outcome measures (most notably restricting cervical range of motion) used for neck collars are summarized herein along with whether they are suitable for a bespoke neck collar specifically designed for people living with MND.

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