4.5 Article

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Article Health Care Sciences & Services

Research barriers in children and young people with life-limiting conditions: a survey

Jordana Natalie Peake et al.

Summary: Studies suggest that obtaining research ethics committee (REC) approval and overcoming clinician gatekeeping are major challenges in recruiting children and young people (CYP) with life-limiting conditions (LLCs) and life-threatening illnesses (LTIs) for research. Chief investigators (CIs) in the UK reported limitations on funding, governance procedures, and clinician gatekeeping as barriers, and proposed solutions such as involving CYP and their families in study design and improving relationships with clinicians. These findings have broader implications beyond the UK and highlight the importance of collaboration and visibility in pediatric palliative care research.

BMJ SUPPORTIVE & PALLIATIVE CARE (2022)

Editorial Material Pediatrics

Spiritual care: supporting the voice, and the courage, of a 13-year-old girl

Emma Heckford et al.

ARCHIVES OF DISEASE IN CHILDHOOD (2022)

Article Pediatrics

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study

Lucy Coombes et al.

Summary: This study aims to identify the symptoms, concerns, and care priorities of children with life-limiting conditions and their families. The results show that children experience symptoms such as pain and seizures, and have emotional, social, and existential concerns. The study emphasizes the importance of pursuing normal childhood activities. The findings suggest the need for a holistic, child-centred approach to care, as well as improvements in the accessibility, co-ordination, and availability of health services.

EUROPEAN JOURNAL OF PEDIATRICS (2022)

Article Health Care Sciences & Services

COSMIN reporting guideline for studies on measurement properties of patient-reported outcome measures

Joel J. Gagnier et al.

Summary: This study developed a set of 71 consensus items for reporting guidelines for primary studies of measurement properties of PROMs, with 35 common items and 41 specific items. These items will guide researchers on including necessary information in their reports, improving completeness of reporting for these important studies.

QUALITY OF LIFE RESEARCH (2021)

Article Philosophy

A realist approach to thematic analysis: making sense of qualitative data through experiential, inferential and dispositional themes

Gareth Wiltshire et al.

Summary: This article discusses the thematic analysis, emphasizing the need for researchers to navigate the tensions between different analytical methods. The authors propose resolving these tensions by developing an approach underpinned by realist philosophy of science, aiming to reconcile existing binaries in thematic analysis.

JOURNAL OF CRITICAL REALISM (2021)

Article Pediatrics

A Child-centered Method of Interviewing Children with Movement Impairments

Parimala S. Kanagasabai et al.

PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS (2018)

Review Health Care Sciences & Services

Understanding death with limited experience in life: dying children's and adolescents' understanding of their own terminal illness and death

Alan T. Bates et al.

CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE (2015)

Article Health Care Sciences & Services

Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus

Christina M. Puchalski et al.

JOURNAL OF PALLIATIVE MEDICINE (2014)

Article Health Care Sciences & Services

Using the framework method for the analysis of qualitative data in multi-disciplinary health research

Nicola K. Gale et al.

BMC MEDICAL RESEARCH METHODOLOGY (2013)

Article Public, Environmental & Occupational Health

Children and Youth With Disabilities: Innovative Methods for Single Qualitative Interviews

Gail Teachman et al.

QUALITATIVE HEALTH RESEARCH (2013)

Article Pharmacology & Pharmacy

Developing a Valid Patient-Reported Outcome Measure

N. E. Rothrock et al.

CLINICAL PHARMACOLOGY & THERAPEUTICS (2011)

Article Health Care Sciences & Services

Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference

Christina Puchalski et al.

JOURNAL OF PALLIATIVE MEDICINE (2009)

Article Health Care Sciences & Services

Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups

Allison Tong et al.

INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE (2007)

Article Health Care Sciences & Services

Addressing spirituality in pediatric hospice and palliative care

B Davies et al.

JOURNAL OF PALLIATIVE CARE (2002)