The social context of burning mouth syndrome: an exploratory pilot study of stigma, discrimination, and pain

Background The social context of burning mouth syndrome (BMS) has received little attention in the scientific literature. However, social psychological theory and insights from those with lived experiences suggest that people living with BMS experience compounding effects of stigma related to their pain, diagnosis (or lack thereof), and intersectional identities. Objective Our aim is to provide initial evidence and to motivate new directions for research on BMS. Here, we present the results of an exploratory pilot study (n = 16) of women living with BMS in the United States. Methods Participants completed self-report measures of stigma, discrimination, and pain, as well as laboratory assessments of pain through quantitative sensory testing. Results Results indicate a high prevalence of internalized BMS stigma, experience of BMS-related discrimination from clinicians, and gender stigma consciousness in this population. Moreover, results provide initial evidence that these experiences are related to pain outcomes. The most robust pattern of findings is that internalized BMS stigma was related to greater clinical pain severity, interference, intensity, and unpleasantness. Conclusion Given the prevalence and pain-relevance of intersectional stigma and discrimination identified in this pilot study, lived experience and social context should be incorporated into future research on BMS.

Automated summary

This article investigates the experience of individuals living with burning mouth syndrome (BMS) within a social context, revealing the compounding effects of stigma related to pain, diagnosis, and intersectional identities. The findings indicate that internalized BMS stigma is related to greater clinical pain severity and interference, highlighting the importance of considering lived experience and social context in future BMS research.