4.5 Review

Rehabilitation interventions for young adult cancer survivors: A scoping review

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Improving Symptom Management for Survivors of Young Adult Cancer: Development of a Novel Intervention

Caroline S. Dorfman et al.

Summary: Effective symptom management is crucial for young adult cancer survivors, with pain, fatigue, and distress identified as top concerns. A tailored behavioral symptom management program was developed based on feedback from survivors and providers, combining traditional coping skills, physical activity, and strategies from different therapeutic approaches. The program will be further refined and evaluated in a pilot randomized controlled trial.

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY (2023)

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Patient reported outcome measure domains and tools used among adolescents and young adults with cancer: A scoping review

Teyl Engstrom et al.

Summary: Adolescent and young adult (AYA) cancer patients and survivors face unique issues and it is important to use appropriate Patient Reported Outcome Measures (PROMs) to measure these issues.

CRITICAL REVIEWS IN ONCOLOGY HEMATOLOGY (2023)

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Emotional distress among survivors of adolescent and young adult cancer or adult cancer

Eric Adjei Boakye et al.

Summary: This study examined emotional distress in cancer survivors diagnosed as adolescents or young adults compared to survivors diagnosed as middle/older adults and the general population without a history of cancer. The findings showed that emotional distress was more prevalent among young adult cancer survivors than middle/older adult survivors. However, there was no difference in emotional distress between young adult cancer survivors and the general population without cancer.

ANNALS OF EPIDEMIOLOGY (2022)

Review Oncology

A scoping review to map the evidence of physical activity interventions in post-treatment adolescent and young adult cancer survivors

Maxime Caru et al.

Summary: This scoping review summarizes previous studies on physical activity interventions in AYA cancer survivors, indicating that such interventions are feasible and acceptable. The interventions mainly focused on individualized and aerobic activities. However, the current evidence in this area is limited.

CRITICAL REVIEWS IN ONCOLOGY HEMATOLOGY (2022)

Article Oncology

Needs for information about lifestyle and rehabilitation in long-term young adult cancer survivors

Lene Thorsen et al.

Summary: The study found that long-term young adult cancer survivors often have information needs regarding lifestyle and rehabilitation, and these needs are associated with higher treatment intensity, increasing number of late effects, and an unhealthy lifestyle. It is recommended that assessments of these information needs become a part of long-term care for cancer survivors.

SUPPORTIVE CARE IN CANCER (2022)

Article Oncology

Development and initial testing of TOGETHER-YA: an eHealth-delivered and group-based psychosocial intervention for young adult cancer survivors

Laura B. Oswald et al.

Summary: This study developed TOGETHER-YA, an e-Health intervention for young adult cancer survivors, and tested its feasibility and acceptability in a pilot trial. TOGETHER-YA is a 10-week intervention that includes relaxation training, cognitive-behavioral therapy, and health education. The study found that TOGETHER-YA met feasibility and acceptability benchmarks, and received positive feedback from participants. It is the first HRQOL intervention delivered through e-Health and group-based support for a broad range of young adult survivors.

SUPPORTIVE CARE IN CANCER (2022)

Review Oncology

Rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer: a scoping review

Marc Sampedro Pilegaard et al.

Summary: This scoping review examined existing research on rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer between 2010 and 2019, revealing a sparse amount of studies. Future research should focus on better reaching and supporting socioeconomically disadvantaged individuals with advanced cancer in community-based care.

ACTA ONCOLOGICA (2021)

Article Oncology

A core set of patient-reported outcomes for population-based cancer survivorship research: a consensus study

Imogen Ramsey et al.

Summary: This study aimed to establish a core set of patient-reported outcomes (PROs) for cancer survivors, identifying twelve outcome domains deemed most important for assessing long-term health, functioning, and quality of life. The adoption of this core outcome set will ensure that these critical survivorship outcomes are consistently measured in future population-based research, enhancing the quality and comparability of data provided by cancer survivors.

JOURNAL OF CANCER SURVIVORSHIP (2021)

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Living beyond cancer: Adolescent and young adult perspectives on choice of and participation in meaningful occupational roles

Amy Wallis et al.

Summary: The study found that the experience of cancer has lasting impacts on the occupational roles of adolescents and young adults, with changes in relationships, transitioning towards the future, and adjustments in future career priorities being the main themes identified.

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Evaluation of a Positive Psychology Group Intervention in Nature for Young Cancer Survivors to Promote Well-Being and Post-Cancer Identity Development

Thomas Albers et al.

Summary: The study found that participants expected to be supported in finding their post-cancer identity and receiving acknowledgment and recognition in fellow AYA cancer survivors. The intervention was perceived as positively contributing to post-cancer identity development, with peer support and the nature-rich environment being the most appreciated elements.

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY (2021)

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Psychosocial and Biological Outcomes of Immersive, Mindfulness-Based Treks in Nature for Groups of Young Adults and Caregivers Affected by Cancer: Results from a Single Arm Program Evaluation from 2016-2021

David Victorson et al.

Summary: The COVID-19 pandemic has exacerbated connection deficit disorder, especially among young adults affected by cancer, impacting their educational, career, social, and personal pursuits. Meaningful connections with nature, peers, and oneself can lead to significant improvements in mental health and well-being.

INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2021)

Article Medicine, Research & Experimental

Promoting physical activity in young adult cancer survivors using mHealth and adaptive tailored feedback strategies: Design of the Improving Physical Activity after Cancer Treatment (IMPACT) randomized controlled trial

Carmina G. Valle et al.

Summary: The IMPACT trial aims to test the efficacy of a mobile physical activity intervention for young adult cancer survivors, targeting improvements in behavioral capability, self-regulation, and social support using social cognitive theory and self-regulation strategies. The program includes tailored feedback, text message prompts, and peer support through Facebook, and will be evaluated using methods such as accelerometry.

CONTEMPORARY CLINICAL TRIALS (2021)

Article Oncology

A Pilot Randomized Controlled Trial of a Fitbit- and Facebook-Based Physical Activity Intervention for Young Adult Cancer Survivors

Ashleigh M. Johnson et al.

Summary: The Fitbit and Facebook-based physical activity intervention proved to be feasible for young adult cancer survivors, showing promising effects on reducing sedentary time. However, the intervention did not significantly impact moderate-to-vigorous intensity activity or quality of life measures.

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY (2021)

Review Oncology

Adolescent and Young Adult (AYA) Cancer Survivorship Practices: An Overview

Silvie H. M. Janssen et al.

Summary: Adolescent and young adult (AYA) cancer patients, aged 15-39 years old, face unique challenges in their disease trajectory. Although the number of AYA cancer survivors has increased, they are at risk of long-term and late effects. Research efforts are needed to inform survivorship care for this growing population.

CANCERS (2021)

Article Oncology

Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescent and Young Adult Cancer Survivors? A Mixed-Methods Pilot Study

Lena Fauske et al.

Summary: This pilot intervention study shows promising results in reducing chronic fatigue and improving energy levels in adolescent and young adult cancer survivors through the Lightning Process(R) training programme. The quantitative data and qualitative findings both support the significant improvements reported by the participants after the intervention, suggesting the potential benefits of the LP programme in oncology care.

CANCERS (2021)

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Effectiveness of rehabilitation interventions on the secondary consequences of surviving a cardiac arrest: a systematic review and meta-analysis

Vicky L. Joshi et al.

Summary: The study aimed to assess the effectiveness of rehabilitation interventions on the secondary physical, neurological, and psychological consequences of cardiac arrest for adult survivors. Limited evidence was found for the effectiveness of rehabilitation interventions on health-related quality of life and neurological function. Further high-quality studies are recommended to provide more conclusive results.

BMJ OPEN (2021)

Article Psychology, Social

Feasibility and acceptability of a telehealth behavior change intervention for promoting physical activity and fruit and vegetable consumption among rural-living young adult cancer survivors

Jenson Price et al.

Summary: The study assessed the feasibility and acceptability of a 12-week telehealth behavior change intervention targeting rural-living young adult cancer survivors. Results indicated high rates of feasibility and acceptability, with participants finding the intervention's duration, synchronous communication with the health coach, and distance-based delivery mode acceptable.

JOURNAL OF PSYCHOSOCIAL ONCOLOGY (2021)

Review Oncology

Physical Activity in Young Adult Cancer Survivors: A Scoping Review

Ann Marie Moraitis et al.

Summary: The review highlights the limited understanding of the effects of physical activity on young adult cancer survivors, with a lack of clinical guidelines and research specific to this population hindering its use as a symptom management strategy. Further research is needed to address the development and clinical implementation of physical activity guidelines for this group.

ONCOLOGY NURSING FORUM (2021)

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A systematic review of rehabilitation and exercise recommendations in oncology guidelines

Nicole L. Stout et al.

Summary: This report systematically evaluated rehabilitation recommendations in 69 oncology guidelines, identifying that some guidelines support referral to rehabilitation services but lack specific assessment and intervention recommendations. 21 guidelines achieved a high quality score and were fully extracted. The findings suggest that while rehabilitation is recognized as an important component of oncology care, actual utilization rates remain low.

CA-A CANCER JOURNAL FOR CLINICIANS (2021)

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Derick T. Wade

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The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors

Jennifer M. Jones et al.

JOURNAL OF CLINICAL MEDICINE (2020)

Article Education & Educational Research

Telehealth coaching for rural-living young adult cancer survivors: A protocol

Jenson Price et al.

HEALTH EDUCATION JOURNAL (2020)

Review Sport Sciences

Physical Activity in Cancer Prevention and Survival: A Systematic Review

Anne McTiernan et al.

MEDICINE & SCIENCE IN SPORTS & EXERCISE (2019)

Article Oncology

Adolescent and young adult oncology-past, present, and future

Allison G. Close et al.

CA-A CANCER JOURNAL FOR CLINICIANS (2019)

Article Social Sciences, Interdisciplinary

Back on Track: A Longitudinal Mixed Methods Study on the Rehabilitation of Young Adult Cancer Survivors

May Aasebo Hauken et al.

JOURNAL OF MIXED METHODS RESEARCH (2019)

Article Medicine, General & Internal

PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

Andrea C. Tricco et al.

ANNALS OF INTERNAL MEDICINE (2018)

Review Oncology

Digital Health Interventions for Adolescent and Young Adult Cancer Survivors

Katie A. Devine et al.

JCO CLINICAL CANCER INFORMATICS (2018)

Article Public, Environmental & Occupational Health

Engagement of young adult cancer survivors within a Facebook-based physical activity intervention

Carmina G. Valle et al.

TRANSLATIONAL BEHAVIORAL MEDICINE (2017)

Article Oncology

Randomized Trial of a Physical Activity and Meditation Intervention for Young Adult Cancer Survivors

Carolyn Rabin et al.

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY (2016)

Article Medicine, General & Internal

Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide

Tammy C. Hoffmann et al.

BMJ-BRITISH MEDICAL JOURNAL (2014)

Article Psychology, Clinical

Intervention Format and Delivery Preferences Among Young Adult Cancer Survivors

Carolyn Rabin et al.

INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE (2013)

Article Oncology

Internet-Based Physical Activity Intervention Targeting Young Adult Cancer Survivors

Carolyn Rabin et al.

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY (2011)

Editorial Material Rehabilitation

Goal setting in rehabilitation: an overview of what, why and how

Derick T. Wade

CLINICAL REHABILITATION (2009)

Article Oncology

Information and service needs for young adult cancer survivors

Brad Zebrack

SUPPORTIVE CARE IN CANCER (2009)

Review Rehabilitation

Is goal planning in rehabilitation effective? A systematic review

William M. M. Levack et al.

CLINICAL REHABILITATION (2006)

Review Rehabilitation

Theoretical aspects of goal-setting and motivation in rehabilitation

R Siegert et al.

DISABILITY AND REHABILITATION (2004)

Review Psychology

Social cognitive theory: An agentic perspective

A Bandura

ANNUAL REVIEW OF PSYCHOLOGY (2001)