4.5 Review

Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Editorial Material Nursing

Importance of palliative nursing in a critical healthcare world

Bridget Johnston

INTERNATIONAL JOURNAL OF PALLIATIVE NURSING (2023)

Review Pediatrics

Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review

Merel M. van Kempen et al.

Summary: This review explores the content and experience of follow-up conversations between bereaved parents and regular healthcare professionals. The study revealed that these conversations revolve around gaining information, receiving emotional support, and facilitating parents to provide feedback. Most parents and healthcare professionals found these conversations meaningful and beneficial.

ACTA PAEDIATRICA (2022)

Review Medicine, General & Internal

Report of the Lancet Commission on the Value of Death: bringing death back into life

Libby Sallnow et al.

LANCET (2022)

Article Health Care Sciences & Services

Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making

Danai Papadatou et al.

Summary: The study found that parents make decisions about end-of-life care and death for their child through consensus, accommodation, imposition of professional decisions, or imposition of parents' decisions. Factors influencing these decisions include awareness of dying, parental caregiving competence, professional competence, views on symptom management, timing of decision-making, and the desire to be seen as a 'good parent'. Supporting parents in decision-making includes providing clear and honest information, recognizing their understanding of being 'good parents', and offering opportunities to enhance their caregiving skills.

PALLIATIVE MEDICINE (2021)

Article Nursing

Being a parent: Findings from a grounded theory of memory-making in neonatal end-of-life care

Rebecca Thornton et al.

Summary: Memory-making is crucial for bereaved parents, affirming their identity and importance, and significantly impacting their experience of loss. Opportunities to engage with, care for, and connect with the baby play a key role in parents' memory-making experiences.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2021)

Article Critical Care Medicine

DEFINING A GOOD DEATH IN THE PEDIATRIC INTENSIVE CARE UNIT

Elizabeth G. Broden et al.

AMERICAN JOURNAL OF CRITICAL CARE (2020)

Article Health Care Sciences & Services

Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study

Laura K. Sedig et al.

AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE (2020)

Review Pediatrics

Good-Parent Beliefs: Research, Concept, and Clinical Practice

Meaghann S. Weaver et al.

PEDIATRICS (2020)

Article Nursing

Creating Evidence: Findings from a Grounded Theory of Memory-Making in Neonatal Bereavement Care in Australia

Rebecca Thornton et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2020)

Review Health Care Sciences & Services

Family experiences with palliative care for children at home: a systematic literature review

Anette Winger et al.

BMC PALLIATIVE CARE (2020)

Review Nursing

Home-Based End of Life Care for Children and their Families - A Systematic Scoping Review and Narrative Synthesis

Cari Malcolm et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2020)

Review Health Care Sciences & Services

Socioeconomic factors affecting access to preferred place of death: A qualitative evidence synthesis

Victoria Turner et al.

PALLIATIVE MEDICINE (2019)

Review Nursing

Parental Perspectives on Roles in End-of-Life Decision Making in the Pediatric Intensive Care Unit: An Integrative Review

Rachel A. Bennett et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2019)

Review Health Care Sciences & Services

Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

Poh Heng Chong et al.

JOURNAL OF PALLIATIVE MEDICINE (2019)

Article Health Policy & Services

The enactment stage of end-of-life decision-making for children

Jane Elizabeth Sullivan et al.

PALLIATIVE & SUPPORTIVE CARE (2019)

Article Health Care Sciences & Services

Applying GRADE-CERQual to qualitative evidence synthesis findings: introduction to the series

Simon Lewin et al.

IMPLEMENTATION SCIENCE (2018)

Article Nursing

Becoming a Team: The Nature of the Parent-Healthcare Provider Relationship when a Child is Dying in the Pediatric Intensive Care Unit

Ashleigh E. Butler et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2018)

Article Pediatrics

Supporting Parent Caregivers of Children with Life-Limiting Illness

Kendra D. Koch et al.

CHILDREN-BASEL (2018)

Article Nursing

End-of-Life Decision Making for Parents of Extremely Preterm Infants

Manya J. Hendriks et al.

JOGNN-JOURNAL OF OBSTETRIC GYNECOLOGIC AND NEONATAL NURSING (2017)

Article Health Care Sciences & Services

Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis

Stephen R. Connor et al.

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2017)

Article Public, Environmental & Occupational Health

You Can Only Give Warmth to Your Baby When It's Too Late: Parents' Bonding With Their Extremely Preterm and Dying Child

Andrea Abraham et al.

QUALITATIVE HEALTH RESEARCH (2017)

Review Oncology

Experiences of Pediatric Oncology Patients and Their Parents at End of Life: A Systematic Review

Kathleen Montgomery et al.

JOURNAL OF PEDIATRIC ONCOLOGY NURSING (2016)

Article Health Care Sciences & Services

Parental Perspectives of Communication at the End of Life at a Pediatric Oncology Institution

Jennifer M. Snaman et al.

JOURNAL OF PALLIATIVE MEDICINE (2016)

Article Nursing

Parent Perspectives of Neonatal Intensive Care at the End-of-Life

Erin R. Currie et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2016)

Review Pediatrics

Family Experience and PICU Death: A Meta-Synthesis

Ashleigh E. Butler et al.

PEDIATRICS (2015)

Review Nursing

Parents' experiences of healthcare provider actions when their child dies: An integrative review of the literature

Ashleigh Butler et al.

JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING (2015)

Review Nursing

When a Child Dies: Parents' Experiences of Palliative Care-An Integrative Literature Review

Christina Melin-Johansson et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2014)

Article Health Care Sciences & Services

Parent's Perceptions of Health Care Providers Actions Around Child ICU Death: What Helped, What Did Not

Dorothy Brooten et al.

AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE (2013)

Article Health Care Sciences & Services

Pediatric Palliative Care in Canada and the United States: A Qualitative Metasummary of the Needs of Patients and Families

Moire Stevenson et al.

JOURNAL OF PALLIATIVE MEDICINE (2013)

Article Health Care Sciences & Services

Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ

Allison Tong et al.

BMC MEDICAL RESEARCH METHODOLOGY (2012)

Article Health Care Sciences & Services

Addressing Parental Bereavement Support Needs at the End of Life for Infants with Complex Chronic Conditions

Juliet S. Tan et al.

JOURNAL OF PALLIATIVE MEDICINE (2012)

Article Oncology

Parental Decision Making for Children With Cancer at the End of Life: A Meta-Ethnography

Katherine E. Heinze et al.

JOURNAL OF PEDIATRIC ONCOLOGY NURSING (2012)

Review Nursing

Integrative Review: Parent Perspectives on Care of Their Child at the End of Life

Ann P. Aschenbrenner et al.

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2012)

Article Health Care Sciences & Services

Methods for the thematic synthesis of qualitative research in systematic reviews

James Thomas et al.

BMC MEDICAL RESEARCH METHODOLOGY (2008)

Article Health Care Sciences & Services

Supportive and palliative care needs of families of children who die from cancer: an Australian study

Leanne Monterosso et al.

PALLIATIVE MEDICINE (2008)

Article Nursing

Parental perspectives of initial end-of-life care communication

Verna L. Hendricks-Ferguson

INTERNATIONAL JOURNAL OF PALLIATIVE NURSING (2007)

Article Nursing

Advanced cancer in children: how parents decide on final place of care for their dying child

Julia Hannan et al.

INTERNATIONAL JOURNAL OF PALLIATIVE NURSING (2005)