4.5 Article

1 Real-world assessment of the patient- centredness of endometriosis care: European countries benchmarked by patients

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ELSEVIER SCI LTD
DOI: 10.1016/j.bpobgyn.2022.102311

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Endometriosis; Patient-reported outcomes; Patient-reported outcome measures; International; Europe; Patient-centred care

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European patients seek more patient-centred healthcare by crossing borders. This study validated the ENDOCARE questionnaire in nine different languages and demonstrated its benchmark potential. Significant between-country variance in case-mix-adjusted overall and dimensional patient-centredness scores explained 3-9% of the total variance in patient-centredness across 10 European countries. Compared to the least patient-centred country, endometriosis care in Denmark, Italy, and Belgium was more patient-centred.
European patients cross the borders of their countries to receive more patient-centred healthcare. Benchmarking across European countries for the patient-centredness of endometriosis care had yet to be performed. This study proved the factorial structure and reliability of translation of the ENDOCARE questionnaire in nine different languages. Moreover, the benchmark potential of the ENDOCARE questionnaire was shown by the significant between -country variance for case-mix-adjusted overall and dimensional patient-centredness scores, explaining 3e9% of the total variance in patient-centredness assessed across 10 European countries. Compared with the least patient-centred country, endometriosis care was more patient-centred in Denmark, Italy and Belgium. 'Reaching a diagnosis quickly' and 'physicians demarcating the endometriosis complexity level which they can treat' were

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