期刊
AGE AND AGEING
卷 51, 期 11, 页码 -出版社
OXFORD UNIV PRESS
DOI: 10.1093/ageing/afac230
关键词
dementia; eating; drinking; hospital care; person-centred; communication; carer; qualitative research; older people
资金
- Faculty of Medicine, Prince of Songkla University, Thailand
This study aimed to gain a comprehensive understanding of the experiences, views, and needs of family carers and hospital staff regarding communication and conversations about nutrition and hydration for patients with severe dementia. The study found that families tended to wait for hospital staff to initiate discussions, but they often experienced frustration with delays and repeated conversations. Some staff members felt unprepared to manage these conversations. Additionally, key information and care plans about eating and drinking were not consistently shared during discharge processes.
Background When a person with severe dementia is in hospital and has eating and drinking difficulties, communication between the multidisciplinary team and families can be challenging and lead to suboptimal care. Objective To gain in-depth understanding about the experiences, views and needs of family carers and hospital staff, regarding communication and conversations about nutrition and hydration, for hospital patients with severe dementia. Design Qualitative semi-structured interview study. Setting Acute hospital in England. Methods From January to May 2021, semi-structured interviews were conducted with 29 family carers and hospital staff. Interviews were transcribed verbatim and analysed using reflexive thematic methods. Results Four overarching themes were developed: (i) prerequisites to initiating communication about eating and drinking; (ii) communication aiming to develop agreed care plans; (iii) difficulty discussing palliative and end-of-life care; and (iv) needs of information and plans about future eating and drinking difficulties. Families tended to wait for hospital staff to initiate discussions but usually experienced frustration with delays and repeated conversations with different staff. Some staff felt unprepared to manage these conversations and found it challenging to work across the multidisciplinary team. During discharge processes, key information and care plans about eating and drinking were not regularly passed on to people involved to avoid unnecessary readmissions. Conclusions In acute hospitals, family carers and hospital staff can have disjointed communications and conversations about nutrition and hydration for persons with severe dementia. Timely reassurance, ongoing discussions and clear information sharing will support communication between those involved.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据