Experiences of internet-based treatment for vulvodynia: A qualitative study

Objective: The aim of this study was to describe women's experiences before, under, and after a guided internet-based intervention for vulvodynia. Methods: The design was qualitative, based on content analysis. Participants were women who had undergone guided internet-based treatment for vulvodynia based on acceptance and commitment therapy principles (n = 13). Data were collected through in-depth interviews approximately-one month after participants completed treatment. Results: The analysis revealed the women's experiences of internet-based treatment for vulvodynia. Three themes emerged: dealing with pain alone, which was related to experiences of living with vulvodynia before internet-based treatment; finding new ways, which described the experiences of undergoing an internet-based treatment for vulvodynia and feeling empowered to take control, referring to the experiences of living with vulvodynia after the internet-based treatment. The women described a long search for a diagnosis, revealing a negative experience of healthcare. The internet-based treatment helped them find new ways to manage vulvodynia, but difficulties with the treatment were also experienced. After the intervention, the women reported improvements in wellbeing and having better strategies to manage pain, but also stated that the treatment was insufficient to perceive changes in vulvar pain. Conclusions: The guided internet-based treatment program for vulvodynia based on acceptance and commitment therapy principles was perceived as credible, helpful to manage vulvodynia, and could serve as a complement to regular care. Questions regarding the need for more support and optimal length of treatment need to be further evaluated.

Automated summary

The study aimed to describe women's experiences before, under, and after a guided internet-based intervention for vulvodynia. The findings revealed that women often dealt with pain alone before the internet-based treatment, and had negative experiences with healthcare. However, during the treatment process, they found new ways to manage vulvodynia and felt empowered to take control. After the intervention, the women reported improvements in wellbeing and better strategies to manage pain, but felt that the treatment was insufficient to perceive changes in vulvar pain.