4.5 Review

Ethical Issues in Bereavement Research with Minors: A Scoping Review

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Article Education & Educational Research

When young children grieve: daycare children's experiences when encountering illness and loss in parents

Martin Lytje et al.

Summary: This study interviews parentally bereaved children aged 5-8 and finds that they are developing an understanding of loss and desire truthful information about their parent's illness and the loss. The children value support from their remaining parent, as well as from daycare staff and friends. The findings highlight the important contribution children can make in understanding their own support needs under the right circumstances.

INTERNATIONAL JOURNAL OF EARLY YEARS EDUCATION (2023)

Article Family Studies

Navigating the Gap: Children's Experiences of Home and School Life Following Maternal Death

Helle Holmgren

Summary: Children in the study experienced a clear dichotomy between home life and life outside the home following the death of a parent, finding it challenging to navigate between the two worlds. The recommendations for improving care for bereaved children are based on the children's own advice.

JOURNAL OF FAMILY ISSUES (2022)

Article Psychology, Multidisciplinary

Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care

Rakel Eklund et al.

Summary: Supporting family communication when a parent is dying is crucial, as it differs from everyday communication and can be difficult for families to initiate on their own, entering into a complex and unfamiliar territory.

DEATH STUDIES (2022)

Article Psychology, Multidisciplinary

Finding a safe space: A qualitative study of what makes help helpful for adolescents bereaved by suicide

Karl Andriessen et al.

Summary: The study indicates that adolescents who experience suicide need support and education, and it is important to establish a connection with and feel understood by helpers. They also need to have a sense of control over the help and the ability to access it as needed.

DEATH STUDIES (2022)

Article Psychology, Multidisciplinary

Beyond a traumatic loss: The experiences of mourning alone after parental death during COVID-19 pandemic

Zahra Asgari et al.

Summary: This study used a phenomenological approach to explore the experiences of 15 Iranian adolescents who lost their parent(s) during the COVID-19 pandemic, identifying distress in a shattered life and crisis in crisis as the main themes they faced. The findings highlight the importance of immediate and alternative support for adolescents who have lost their parents during the pandemic.

DEATH STUDIES (2022)

Article Environmental Sciences

The Reactions of Adolescents, Parents and Clinicians to Participating in Qualitative Research Interviews Regarding Adolescents Bereaved by Suicide and Other Traumatic Death

Karl Andriessen et al.

Summary: This study investigates the short-term impact of research participation on adolescents, parents, and clinicians who have experienced the loss of a loved one due to suicide or other traumatic death. Most participants did not experience distress and found participation helpful, recommending others to participate as well. A few participants reported some distress related to anxiety and unpleasant memories. The study suggests that bereaved adolescents, parents, and clinicians can safely participate in research interviews regarding their grief experiences after suicide, finding value in sharing their experiences.

INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2022)

Article Social Work

Remembering love: Memory work of orphaned children in the Philippine drug war

Mira Alexis Ofreneo et al.

Summary: The war on drugs in the Philippines has resulted in a generation of orphaned children facing deep grief and social disarray. Despite their traumatic past, these children are reclaiming agency and hoping for healing and justice in the future.

JOURNAL OF SOCIAL WORK (2022)

Article Psychology, Multidisciplinary

Sources of social support and its importance for cancer-bereaved spouses and their minor children: A cross-sectional study

Maja Holm et al.

Summary: This study aimed to assess the sources of social support received by bereaved families with minor children after the death of a parent/partner, and to determine which sources were perceived as important. The findings revealed that family and friends were considered the most important sources of social support, while support from societal institutions such as healthcare and school was deemed less important and insufficient.

DEATH STUDIES (2022)

Article Psychology, Multidisciplinary

The grief and communication family support intervention: Intervention fidelity, participant experiences, and potential outcomes

Megan Weber Falk et al.

Summary: This study evaluated the fidelity of the intervention and explored the experiences and potential outcomes of participants. The results showed a high level of fidelity and provided preliminary evidence that the intervention can improve communication and relationships in parentally bereaved families.

DEATH STUDIES (2022)

Article Health Care Sciences & Services

What Children Wished They Had/Had Not Done and Their Coping in the First 13 Months after Their Sibling's Neonatal/Pediatric Intensive Care Unit/Emergency Department Death

JoAnne M. Youngblut et al.

Summary: The research found that children expressed more about what they wished they had done rather than what they wished they had not done. Children coped with their sibling's death by talking with family and friends and resuming their usual activities.

JOURNAL OF PALLIATIVE MEDICINE (2021)

Article Communication

Cleaning Out the Closet: Communicated Narrative Sense-Making of Bereavement

Kendyl A. Barney et al.

Summary: Through interviews with family members sorting through a deceased family member's belongings, the study found that cleaning out the closet serves as a unique space for communication, understanding, and well-being for families during the turbulent period of bereavement.

JOURNAL OF FAMILY COMMUNICATION (2021)

Article Psychology, Multidisciplinary

Family Communication and Psychological Health in Children and Adolescents Following a Parent's Death From Cancer

Megan Weber et al.

Summary: The study found that after parental death from cancer, parents reported moderate communication quality and good psychological health for children and adolescents, while adolescent self-reports indicated lower communication quality with their parent and poorer psychological health. There were significant associations between communication quality and psychological health.

OMEGA-JOURNAL OF DEATH AND DYING (2021)

Article Psychology, Multidisciplinary

Digital Storytelling as an Intervention for Bereaved Family Members

Abigail J. Rolbiecki et al.

Summary: Digital Storytelling as a bereavement intervention showed promising results in facilitating growth, meaning-making, and closure among bereaved family members. Participants benefited from organizing their thoughts and emotions, gaining confidence in sharing feelings, and finding closure through the process.

OMEGA-JOURNAL OF DEATH AND DYING (2021)

Article Humanities, Multidisciplinary

Voices of middle childhood children who lost a mother

Alexandrea Parsons et al.

Summary: Children's understanding and coping with death after losing a mother are significantly influenced by their developmental stage. Findings from qualitative research suggest that bereaved children require specific support and recommendations to build resilience and develop coping strategies.

MORTALITY (2021)

Article Ethics

There Oughta Be a Law: When Does(n't) the US Common Rule Apply?

Michelle N. Meyer

JOURNAL OF LAW MEDICINE & ETHICS (2020)

Article Environmental Sciences

It Changes Your Orbit: The Impact of Suicide and Traumatic Death on Adolescents as Experienced by Adolescents and Parents

Karl Andriessen et al.

INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2020)

Article Communication

Narrative Resources amid Unspeakable Grief: Teens Foster Connection and Resilience in Family Storytelling

Stephanie M. Pangborn

JOURNAL OF FAMILY COMMUNICATION (2019)

Article Psychology, Multidisciplinary

Why did he choose to die?: A meaning-searching approach to parental suicide bereavement in youth

Anneli Silven Hagstrom

DEATH STUDIES (2019)

Article Medicine, General & Internal

PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

Andrea C. Tricco et al.

ANNALS OF INTERNAL MEDICINE (2018)

Article Psychology, Multidisciplinary

Don't bother about me. The grief and mental health of bereaved adolescents

Karl Andriessen et al.

DEATH STUDIES (2018)

Article Psychology, Multidisciplinary

Voices We Forget-Danish Students Experience of Returning to School Following Parental Bereavement

Martin Lytje

OMEGA-JOURNAL OF DEATH AND DYING (2018)

Article Literature

The Memory Box Project: Ethical Considerations of Memory Work Amongst AIDS Orphans in South Africa

Judith Lutge Coullie

CURRENT WRITING-TEXT AND RECEPTION IN SOUTHERN AFRICA (2018)

Review Psychiatry

Harmful or Helpful? A Systematic Review of How Those Bereaved Through Suicide Experience Research Participation

Karl Andriessen et al.

CRISIS-THE JOURNAL OF CRISIS INTERVENTION AND SUICIDE PREVENTION (2018)

Article Social Sciences, Interdisciplinary

Learning from failure: are practitioner researchers the answer when conducting researchon sensitive topics with vulnerable children and young people?

Nina Vaswani

INTERNATIONAL JOURNAL OF SOCIAL RESEARCH METHODOLOGY (2018)

Article Environmental Sciences

Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study

Elisabeta Ioana Hiriscau et al.

INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2016)

Article Health Policy & Services

Parental relationships beyond the grave: Adolescents' descriptions of continued bonds

Dana M. Hansen et al.

PALLIATIVE & SUPPORTIVE CARE (2016)

Article Psychology, Multidisciplinary

Always With Me: Understanding Experiences of Bereaved Children Whose Baby Sibling Died

Christine Jonas-Simpson et al.

DEATH STUDIES (2015)

Article Ethics

PERSPECTIVES FROM SOUTH AND EAST ASIA ON CLINICAL AND RESEARCH ETHICS: A LITERATURE REVIEW

Bridget Pratt et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2014)

Article Psychiatry

Challenges and Opportunities for Suicide Bereavement Research The Experience of Ethical Board Review

Melinda Moore et al.

CRISIS-THE JOURNAL OF CRISIS INTERVENTION AND SUICIDE PREVENTION (2013)

Article Psychology, Multidisciplinary

HEALING COMPONENTS OF A BEREAVEMENT CAMP: CHILDREN AND ADOLESCENTS GIVE VOICE TO THEIR EXPERIENCES

Irene Searles McClatchey et al.

OMEGA-JOURNAL OF DEATH AND DYING (2012)

Article Psychology, Clinical

Peer-group support for bereaved children: a qualitative interview study

Monika Metel et al.

CHILD AND ADOLESCENT MENTAL HEALTH (2011)

Review Medicine, General & Internal

Guidance for Developers of Health Research Reporting Guidelines

David Moher et al.

PLOS MEDICINE (2010)

Article Psychology, Multidisciplinary

AFRICAN-AMERICAN TEEN GIRLS GRIEVE THE LOSS OF FRIENDS TO HOMICIDE: MEANING MAKING AND RESILIENCE

Celeste M. Johnson

OMEGA-JOURNAL OF DEATH AND DYING (2010)

Article Social Sciences, Interdisciplinary

Qualitative bereavement research: incongruity between the perspectives of participants and research ethics boards

Jennifer L. Buckle et al.

INTERNATIONAL JOURNAL OF SOCIAL RESEARCH METHODOLOGY (2010)

Article Psychology, Multidisciplinary

Stigmatization and Suicide Bereavement

William Feigelman et al.

DEATH STUDIES (2009)

Article Ethics

Research Ethics in Japanese Higher Education: Faculty Attitudes and Cultural Mediation

Bruce Macfarlane et al.

JOURNAL OF ACADEMIC ETHICS (2008)

Article Psychology, Multidisciplinary

It can save you if you just forget: Closeness and Competence as Conditions for Coping among Ugandan Orphans

Krister Westlye Fjermestad et al.

JOURNAL OF PSYCHOLOGY IN AFRICA (2008)

Article Psychology, Multidisciplinary

Ethical issues in the study of bereavement: Tehe opinions of bereaved adults

Andrea M. Beck et al.

DEATH STUDIES (2007)

Article Ethics

A needs assessment to build international research ethics capacity

John E. Sidle et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2006)

Article Health Care Sciences & Services

Research with bereaved parents: a question of how not why

J. L. Hynson et al.

PALLIATIVE MEDICINE (2006)

Article Psychiatry

Siblings after suicide - The forgotten bereaved

K Dyregrov et al.

SUICIDE AND LIFE-THREATENING BEHAVIOR (2005)

Article Psychology, Multidisciplinary

Facilitating attachment between school-aged children and a dying parent

A Saldinger et al.

DEATH STUDIES (2004)

Article Health Care Sciences & Services

Bereavement research: methodological issues and ethical concerns

M Stroebe et al.

PALLIATIVE MEDICINE (2003)

Article Social Sciences, Interdisciplinary

Research with children - The same or different from research with adults?

S Punch

CHILDHOOD-A GLOBAL JOURNAL OF CHILD RESEARCH (2002)