Does Reality Overcome the Expected? Survey on Informal Caregivers' Profile: A Nurse-Led Study in Times of COVID-19

The increasing overload of chronic conditions raises challenges for the health system. Informal caregivers have a major role in ensuring the quality of life of the cared-for person, despite the reported lack of working resources which can lead to unmet needs. This article reports on the first part of a nurse-led research project entitled Informal caregiver' profiles in Lisbon county: a health community approach.' We aimed to support decision-making by developing an informal caregiver profile to promote tailored interventions. A survey addressing the dyad was developed and submitted to a convenient, network-based, stratified sample of carers aged 18 years or above. More than thirty community partners supported the identification of caregivers. Data were submitted to univariate descriptive analysis. A profile of the cared-for person and the informal caregiver was uncovered by identifying 639 caregivers, of whom the majority lived with the cared-for person. Only four percent planned the transition to a caregiver role, and no more than 10% had access to support programs. Approximately half of the respondents found that COVID-19 negatively impacted their performance in the caregiver role. Developing a local and tailored strategy with collaboration between healthcare professionals, academics, and community partners is key to ensuring that meaningful support is provided to caregivers.

Automated summary

The increasing overload of chronic conditions poses challenges for healthcare systems. Informal caregivers play a crucial role in ensuring the quality of life for the cared-for individuals, despite the lack of resources to meet their needs. This article presents the findings from a nurse-led research project aimed at developing an informal caregiver profile to facilitate tailored interventions. The study identified 639 caregivers, with the majority living with the cared-for person. Only a small percentage of caregivers had planned to take on the role, and a low percentage had access to support programs. About half of the respondents reported negative impacts on their caregiver role due to COVID-19. Collaborative efforts between healthcare professionals, academics, and community partners are essential in developing localized and personalized strategies to provide meaningful support to caregivers.