期刊
NUTRIENTS
卷 14, 期 12, 页码 -出版社
MDPI
DOI: 10.3390/nu14122395
关键词
nutrition; hydration; dementia; eating; drinking; food; ethnic minorities; culture
资金
- Marie Curie [MCRGS-20171219-8004]
- National Institute for Health Research (NIHR) School for Primary Care Research [489]
- NIHR In-Practice Fellowship [300286]
- UCL
- NIHR Policy Research Unit in Health and Social Care Workforce
- NIHR Applied Research Collaborative (ARC), South London
This study explores the experiences of ethnic minority groups in managing eating and drinking difficulties in dementia. It found that food and drink are strongly linked to identity, culture, and emotions. Providing culturally familiar foods and supporting previous food-related roles promoted reminiscence and encouraged eating and drinking for people with dementia. Social interactions also played a role, but could lead to distress in individuals with advanced dementia.
Eating and drinking difficulties, such as loss of appetite and swallowing problems, are common in dementia, but little is known about the experiences of ethnic minority groups who are managing these difficulties at home. The purpose of our study was to explore the meaning of food, the impact of dementia on eating and drinking, and carers' experiences of support. We undertook semi-structured interviews with 17 carers and people with dementia from ethnic minority backgrounds living in England, using thematic analysis to analyse the data. Food/drink had strong links to identity, culture and emotions. Providing culturally familiar foods, celebrating traditional festivals and supporting previous food-related roles promoted reminiscence, which encouraged the people living with dementia to eat and drink, as did social interactions, although these could lead to distress in those with more advanced dementia. Food choices were also influenced by carer strain, generational differences and the impact of health conditions. Despite a strong sense of duty to care for relatives at home, there was low awareness of community support services. The carers expressed a need for culturally tailored support for managing dementia-related eating and drinking difficulties at home. Healthcare professionals must provide contextually relevant advice to carers, being mindful of how cultural backgrounds can affect dietary choices.
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