Handling fatigue in everyday activities at five years after stroke: A long and demanding process

Background Fatigue is common and can be challenging after stroke. Aim To explore how post-stroke fatigue (PSF) was experienced and handled among people with stroke in their performance of everyday activities and in participation in social activities five years after stroke. Methods Nine persons who perceived PSF one year after stroke onset were interviewed five years later. The interviews were analysed using qualitative content analysis. Results Most participants experienced PSF even five years after stroke and reported longstanding difficulties in everyday activities. Handling fatigue-a long slow process with invisible adjustments in everyday life emerged as the theme. By implementing new strategies in everyday life their PSF lessened over time. Understanding among significant others as to how PSF appears and providing information about PSF early after stroke was perceived important. Conclusion This study adds new knowledge regarding experiences of PSF and long-term support needs. Even if PSF still was reported the participants experienced improvements in everyday life through the application of new strategies. Information about PSF and strategies for managing everyday life should be provided during rehabilitation. Significance This study is one out of only a few focussing on long-term PSF and adjustment to its consequences in everyday life.

Automated summary

This study aims to explore the impact of post-stroke fatigue (PSF) on the performance of everyday activities and participation in social activities among stroke survivors. The results show that most participants still experienced fatigue five years after stroke and faced difficulties in their daily activities. However, by implementing new strategies in their everyday life, they were able to alleviate their fatigue. Understanding and providing information about managing PSF early after stroke is crucial.