期刊
JOURNAL OF CANCER EDUCATION
卷 33, 期 1, 页码 44-51出版社
SPRINGER
DOI: 10.1007/s13187-016-1067-5
关键词
Bio-specimen research; Bio-banking; Ethics; Native American; American Indian; Haudenosaunee; Iroquois; Cancer; Cancer education; Cancer prevention; Clinical trial; Recruitment; Minority; Patient communication
资金
- RPCI's Cancer Center Support Grant from the NCI [P30CA016056]
- NCI Center to Reduce Cancer Health Disparities Patient Navigation Research Grants [U01CA116 874, 340CA1168875-04-53, 5U01 CA116875-05S4]
- NUNEIGHBORS: A Social Science Partnership to Reduce Cancer Disparities [P20CA165592, CA165588, P20CA165592-02S1, P20CA165592-02S2]
- NATIONAL CANCER INSTITUTE [P30CA016056, U01CA116875, P20CA165592, P20CA165588] Funding Source: NIH RePORTER
Biomedical research in culturally distinct communities is often a challenge. Potential barriers to participation occur because science is presented in a format that lacks cultural acknowledgement. Investigations may also fail to showcase beneficial relevance to the communities or include them in true partnership. The history of biomedical research within Native American societies has been complicated by these issues. Historical trauma among many Native groups sometimes transcends into contemporary challenges in both recruitment to and participation particularly in biobanking research. The participants for this study included members of the Haudenosaunee, the People of the Longhouse. Native Americans, including the Haudenosaunee, endure some of the worst health disparities in the country. These include high rates of cancer, obesity, and diabetes which may be linked at least partially to genetic predisposition. Results from a Haudenosaunee urban population shared response on ways to improve recruitment strategies for biospecimen, cancer, and other health-related clinical trials. Mixed methods approaches were used, and community responses indicated the importance of creating trust through respectful partnership; promoting culturally appropriate recruitment materials; the need for a greater understanding of consenting and signature processes; the necessity for concise summary sheets; and a desire to have information that community member understand. Discussion items also include international Indigenous perspectives to biobanking and genetic-related health disparity research.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据