Empirical Evaluation of the Caregivers Passage through Dementia on African American Caregivers

Objectives The purpose of this study was to empirically examine a new psychoeducational intervention that was designed for African American caregivers. Methods African American caregivers (N = 49) to older adults with dementia were recruited from the community to participate in Universal Dementia Caregivers' (UCD) Bootcamp. Participants completed a pre- and post-assessment of dementia and caregiving knowledge, and a 30-day follow-up interview. Results Caregivers who went through the UCD Bootcamp demonstrated an increase in basic knowledge of dementia, caregiving burden and coping strategies. In follow-up interviews, caregivers reported developing confidence, knowledge, and adaptive changes in attitudes toward self and loved one. Conclusions The Bootcamp is a novel psychoeducational intervention that improves caregiver knowledge and confidence. Our model, Caregiver Passage Through Dementia, is a training that can improve caregiver and family members' quality of life. Additionally, developing culturally sensitive interventions could help address the mistrust that exist in African American communities toward medical systems and research. Clinical Implications Clinicians reframing of caregiving as a gift resonates with many African American caregivers. Empowering caregivers through spirituality is often a necessary ingredient to working with African American caregivers. Clinicians need to demonstrate cultural sensitivity when working with African American caregivers.

Automated summary

The study aimed to examine a new psychoeducational intervention designed for African American caregivers. The intervention, called UCD Bootcamp, resulted in increased knowledge of dementia, caregiving burden, and coping strategies among the caregivers who participated. Follow-up interviews revealed positive changes in confidence, knowledge, and attitudes towards self and the care recipients. The findings suggest that this intervention can improve caregiver knowledge and confidence, ultimately enhancing their quality of life. Additionally, developing culturally sensitive interventions could address the mistrust towards medical systems and research in African American communities.