相关参考文献
注意：仅列出部分参考文献，下载原文获取全部文献信息。Addressing patient education priorities in the era of gene therapy for haemophilia: Towards evidence-informed shared decision-making
Laurence Woollard et al.
HAEMOPHILIA (2021)
WFH Guidelines for the Management of Hemophilia, 3rd edition
Alok Srivastava et al.
HAEMOPHILIA (2020)
Patient Preferences in the Treatment of Hemophilia A: A Best-Worst Scaling Case 3 Analysis
Axel C. Muehlbacher et al.
VALUE IN HEALTH (2020)
From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies
Ryan E. Wiley et al.
HAEMOPHILIA (2019)
Exploring the responsiveness of goal attainment scaling in relation to number of goals set in a sample of hemophilia-A patients
Lisa McGarrigle et al.
JOURNAL OF PATIENT-REPORTED OUTCOMES (2019)
Goal Attainment Scaling for haemophilia (GAS-Hem): testing the feasibility of a new patient-centric outcome measure in people with haemophilia
J. C. Roberts et al.
HAEMOPHILIA (2018)
The frequency of joint hemorrhages and procedures in nonsevere hemophilia A vs B
J. Michael Soucie et al.
BLOOD ADVANCES (2018)
The role of patient and healthcare professionals in the era of new hemophilia treatments in developed and developing countries
Fadi Nossair et al.
THERAPEUTIC ADVANCES IN HEMATOLOGY (2018)
Patient powered prophylaxis: A 12-month study of individualized prophylaxis in adults with severe haemophilia A
Haowei (Linda) Sun et al.
HAEMOPHILIA (2017)
Applying a deliberation model to the analysis of consultations in haemophilia: Implications for doctor-patient communication
Giulia Lamiani et al.
PATIENT EDUCATION AND COUNSELING (2017)
A three-talk model for shared decision making: multistage consultation process
Glyn Elwyn et al.
BMJ-BRITISH MEDICAL JOURNAL (2017)
A three-talk model for shared decision making: multistage consultation process
Glyn Elwyn et al.
BMJ-BRITISH MEDICAL JOURNAL (2017)
Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era
M. Recht et al.
HAEMOPHILIA (2016)
An innovative outcome-based care and procurement model of hemophilia management
Alessandro Gringeri et al.
EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH (2016)
The Patient-as-Partner Approach in Health Care: A Conceptual Framework for a Necessary Transition
Philippe Karazivan et al.
ACADEMIC MEDICINE (2015)
Treatment decision-making among Canadian youth with severe haemophilia: a qualitative approach
S. J. Lane et al.
HAEMOPHILIA (2015)
Joining the patient on the path to customized prophylaxis: one hemophilia team explores the tools of engagement
Deborah Gue et al.
JOURNAL OF MULTIDISCIPLINARY HEALTHCARE (2015)
Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents
S. von Mackensen et al.
HAEMOPHILIA (2013)
A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia
J. Nilson et al.
HAEMOPHILIA (2012)
Shared Decision Making: A Model for Clinical Practice
Glyn Elwyn et al.
JOURNAL OF GENERAL INTERNAL MEDICINE (2012)
Analysis of low frequency bleeding data: the association of joint bleeds according to baseline FVIII activity levels
I. E. M. den Uijl et al.
HAEMOPHILIA (2011)
PRACTICAL CONSIDERATIONS FOR GOAL ATTAINMENT SCALING DURING REHABILITATION FOLLOWING ACQUIRED BRAIN INJURY
Per Ertzgaard et al.
JOURNAL OF REHABILITATION MEDICINE (2011)
Blood-induced joint disease: the pathophysiology of hemophilic arthropathy
L. A. Valentino
JOURNAL OF THROMBOSIS AND HAEMOSTASIS (2010)
Patients', physicians', and pharmacists' preferences towards coagulation factor concentrates to treat haemophilia with inhibitors: results from the COHIBA Study
L. Scalone et al.
HAEMOPHILIA (2009)
Attainment of treatment goals by people with Alzheimer's disease receiving galantamine: a randomized controlled trial
K Rockwood et al.
CANADIAN MEDICAL ASSOCIATION JOURNAL (2006)
分享论文
