期刊
BLOOD REVIEWS
卷 52, 期 -, 页码 -出版社
CHURCHILL LIVINGSTONE
DOI: 10.1016/j.blre.2021.100890
关键词
Algorithm; Decision making; Shared; Hemophilia; Patient-centered care; Patient participation; Treatment outcome
类别
资金
- Novo Nordisk
The mainstay of hemophilia treatment is to prevent bleeding and control acute episodes. A practical algorithm has been developed to guide treatment decision-making based on variables such as bleeding phenotype, musculoskeletal status, treatment adherence, venous access, and lifestyle. A patient-focused preference tool has also been proposed to understand individual priorities and goals.
The mainstay of hemophilia treatment is to prevent bleeding through regular long-term prophylaxis and to control acute breakthrough bleeds. Various treatment options are currently available for prophylaxis, and treatment decision-making is a challenging and multifaceted process of identifying the most appropriate option for each patient. A multidisciplinary expert panel convened to develop a practical, patient-oriented algorithm to facilitate shared treatment decision-making between clinicians and patients. Key variables were identified, and an algorithm proposed based on five variables: bleeding phenotype, musculoskeletal status, treatment adherence, venous access, and lifestyle. A complementary, patient-focused preference tool was also hypothesized, with the aim of exploring individual patients' priorities, preferences, and goals. It is hoped that the proposed algorithm and the hypothesized patient preference tool will assist in selecting a treatment for each patient that is as efficient as possible in preventing bleeds while also accounting for the patient's expectations and priorities.
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